Tuesday, April 10, 2018

Updates, Updates, Updates

I'm going to be going to the Cleveland Clinic in July to see Rheumatology, Pain Management, and Neurology. I'm hoping that someone will at least know something about EDS. According to several people, Cleveland Clinic is the place to go for Hypermobile Ehlers-Danlos Syndrome. I really honestly hope they're right. 
Honestly I'm so tired from all of this. I'm tired of fighting all the time and then something else goes wrong with my health. 
I saw an audiologist today and found out that I have hearing loss. And my brain isn't processing what I hear correctly. After I see an ENT and the Cleveland Clinic Neurologist, they're most likely going to be fitting me with hearing aids. 
There might also be something very wrong with my brain and it might be deteriorating faster than I thought and it scares me. Honestly scares me. My brain has always been my greatest strength. The fact that I was the top of my class was the one thing I always fought for. I took pride in being able to remember facts and memories and songs. And now I'm forgetting words right and left, forgetting whole chunks of memory, and having to watch everything with subtitles. It sucks.
Also, my body is getting worse and I need to use my wheelchair more often. Which I'm refusing to do right now because I'm stubborn and sad. Even though it will help me. So I should do it. Rats. Fine, I'll do it. Y'all make a convincing argument. 
I hope the Cleveland Clinic can help me improve my quality of life. I'll do whatever they want. I'll hang upside down and adopt a muskrat. I'll stand on my head and recite the the alphabet backwards (which I've never been able to successfully do). Whatever they want. 
In happier news, I've been really enjoying Brooklyn 99. It's a very light-hearted, sweet show. And Terry Crews is a complete gift to the entire world. God bless Terry Crews. 
This is a very short update, but seeing as I can't remember the last time my blog updated, here we are!