I know I've been absent from this blog for a few months. I'm sorry. I've been so afraid and sick and terrified that anytime I sat down to write anything, I felt an overflow of emotions that wouldn't allow me to express myself articulately. And I'm still in that state, but I think I'm going to try to tell y'all what's up.
My health has gone into another nosedive. I've been terrified, feeling like I'm falling down a slippery slope to some uncertain fate.
I managed to start my internship with a local nonprofit that trains service dogs for veterans. Their name and the names of all veterans and details about that internship can not be discussed here, as I signed a privacy agreement. I had no problem signing that agreement, as I believe the people I work with deserve the privacy the paper asked me to protect. I will say that I think I've found my calling, and it is training service dogs for civilians. I will be re-directing any veteran that comes to me for a service dog to the nonprofit I am interning with, as they are the best at what they do. But I'm very excited to see what the future holds for me as it relates to dog training.
Now, back to health. Long story short, I'm seeing a bunch of specialists and they are testing me for many diseases. They don't think it is EDS anymore or, if I do have EDS, I have other things on top of that. I'm no longer just an Ehlers-Danlos "Zebra," and I'm just so scared. The main thing they think I probably have is Multiple Sclerosis. I had been doing some research on new and scary symptoms that were getting aggressively worse, and some of my EDS forums were talking about how MS was linked to EDS and how MS was the source of all of these symptoms that I realized I had. I researched MS myself, and was astonished how every single detail of MS seemed to line up with my symptoms. I approached my Internal Medicine Specialist with a new list of all my symptoms and told him I was worried about MS. I asked him to tell me if I was being a hypochondriac and that I just had EDS. He told me I was right to worry. My heart sank. He told me that my symptom list was textbook MS. We set up tests and specialists. He did some blood tests to rule out Lupus and RA, and they came back ruling out Lupus and RA. And now we wait. We wait for the horrible news.
Because either way, it will be horrible. If I am told I have MS, it is horrible. If I am told I don't, then I'm back where I was YET AGAIN where I have to fight for tests and diagnoses and some goddamn help.
If I had a dollar for the number of times I've broken down sobbing, telling my husband that I just want someone to help me, I'd have enough money to pay for all the alternative treatments I need to stay upright. I've been collapsed on the bedroom floor, sobbing and begging the powers that be for some form of help more than once in the past couple months.
So here I am, unable to write any sort of good blog post about current events, my dogs, my internship, TV, movies, music, or whatever else because I'm in a blind panic about what is happening inside my body.
So. That's me. How are you all?
Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts
Thursday, October 12, 2017
Friday, June 2, 2017
The Porch Theory
Y'all, I had a dream two nights ago and I just can't stop thinking about it. This dream has radically changed how I think about my life. I woke up today thinking about it again and it's been three hours and I can't sleep or stop thinking about it so I think I'll share. Bear with me as dreams are weird and hazy and confusing, but hopefully you can follow along.
In my dream, I had a session with a famous therapist. Famous therapist's name was Sally or Susan or something like that. My brain isn't super original when it comes to names. Anyways, I was in her office with my husband and I was crying and telling her all about my life and talking about how nothing I'm doing seems to be working. She nodded gravely and told me it was because all I was doing was re-painting my porch. Stay with me, guys. This is where shit gets real. I was like, "This sounds like another mindfulness exercise that isn't going to help," and she told me that those exercises helped you recognize the chips in your porch paint and the other general wear and tear. What the heck, right? She gave me a workbook and told me I needed to do the homework before she saw me again the next day. In my dream, I went home and grumbled about having to do some more pointless analogy therapy that ultimately would do nothing for me. I then opened the workbook and what was in there was fascinating.
The Porch Theory is this idea that your life is built like a porch. (I need to add here that I am not a carpenter, have built stage set pieces, and am fully aware that what follows is not actually a good way to build a porch.) There is a poured foundation made of concrete. On top are four main support beams. Covering those are the long pieces of wood that make up the porch. Then comes the stain/paint and the decorations. Each part of the porch represents something different. The foundation is what your every action stems from. This is the root cause of everything you do. Then the foundation beams are the four main focuses your brain has. The long pieces of wood are your values that stem from those main focuses (which are influenced by the foundation). And then comes the paint/stain, which is the actions that you do and your outward symptoms, caused by the values which stem from the focuses that are influenced by the foundation.
In my dream, I did two written exercises. The first was to analyze my life starting from the paint and working my way back to the foundation. Then I labeled a diagram of my current "porch" with what I had written. This exercise took a long time, even in dream world. I ended up skipping around to the different parts of the "porch" as I tried to make sense of everything. The end result was me staring at this "porch," feeling as though I had been laid bare onto paper. My paint, the outward manifestation of my inward life, included like "people pleaser," "excessive apologizing," "panic and anxiety attacks," "sobbing," "anger towards my health," "shame over needing mobility devices, medications, etc," and "going to countless doctor appointments even though I know this doctor isn't the one for me." I could go on, but you get the point. The long pieces of wood, the values, were things like "religion," "putting family and friends above health," "getting the highest education possible," "being the best," "keeping a clean house at all costs," "forcing my body to stay healthy as much as possible," and "working a good job". The four main support beams were "Not wanting to be abandoned," "Not wanting anyone to regret being around me," "Not wanting to be a burden," and "Thinking everyone else deserves more/better than I do." My foundation was Fear and Worthlessness.
After I did this exercise, I found myself back in the dream therapist's office, sobbing and holding my husband's hands as I told her all about my porch. What could I do? This seemed like a horrible life I'd created for myself, and I felt hopeless about it.
She told me that yes, this is a terrible porch. It is, at its foundation, flawed. She told me that I couldn't expect a beautiful life when my thinking was all stemming from places of fear and worthlessness the same way that I shouldn't expect a porch with a nasty, cracked foundation and rotting wood to be an amazing place to have lemonade and iced tea during the summer with my husband. She told me it wasn't my fault that my porch is shit. She jokingly told me that with the life I've lived, she was surprised the whole damn house hadn't fallen apart. I couldn't stop crying. She got down on my level, looked me in the eyes and quietly asked me if I was ready for a new porch. I told her yes, but how the hell do I do that? She nodded solemnly and said, "Renovations."
She then had me do the second exercise in the workbook. The second exercise was, "Describe your dream porch (aka ideal life/values/etc.). My dream porch's outward appearance were things like "singing in the shower again," and "smiling," and "enjoying time with friends," and "happiness," and "baking" and "painting". My porch boards, my values, were made up of "Living in the moment," "Gratefulness," "Finding contentment," "Loving friends," "Relationship with husband," and others I can't remember right now. The four beams were "mental health," "healthy marriage," "physical health," and "hope." And the foundation? It was Self Love.
Sounds great, right? But how to get there? SallySusan the Dream Therapist was a little hazy on this one, but told me that every time I am having an outward symptom or thought that echoes the nasty porch, to think of the ideal porch and try to follow along with what I think that would look like. For example, if I find myself crying over how messy the house is, I should take a step back and realize that this comes from that gross foundation. I can then try to remind myself of how I want to be thinking. AKA, "Yes, the house is messy but it actually isn't hurting anyone and hey, isn't it great that husband and I have been resting and going places and having fun and yeah, we haven't had time to clean the house but look at all we've done this week!" or "Yes, the house is messy but it actually isn't hurting anyone and if it is, I can ask husband for help because I don't have to do it all by myself and it isn't horrible to ask him to help and we could play music and it could actually be fun!" or "Yes, the house is messy but no, you haven't 'done nothing' all week, you've taken all your pills on time and rested your joints and remember that one time you pet your dog? That was pretty awesome! And it's okay to focus on your health. Remember those beams on your dream porch? It's okay." She told me that I was going to need to go right down to the foundation and change it and then the other changes would follow.
My dream therapist told me that this was going to be nasty, messy work. She told me to think of it like any renovation. There will be setbacks. She told me that any time I experience a setback while working toward this "new porch" and feel like I'll never get there, to just think of it as a construction issue and forgive myself. There might be termites living in the wood of the porch, waiting to be exposed. The renovation crew might take unexpected holidays and leave me with a shattered mess to work around for weeks. Maybe there's some electrical wiring that needs to be replaced. Perhaps we'll get the porch built and realize that the foundation was never actually touched, the crew just said they did it and we have to tear the whole thing apart again. She told me that just as re-making a foundation for a house or porch is ridiculously hard and irritating, re-making a foundation for my life will be, too. And just like porches continually need weather-proofing, the occasional board replacement, re-painting, and other regular maintenance, keeping myself healthy will require constant work. But she told me to look forward to the days when I can sit out on a nice porch, sipping iced tea on a lounger next to my husband and watching the sunset.
Although it was a dream, I'm going to follow along with the Porch Theory and see if it works. Feel free to join me. If you'd like, you can share your own "Dream Porch" with me in the comments or on my Facebook page, Instagram, or Twitter.
In my dream, I had a session with a famous therapist. Famous therapist's name was Sally or Susan or something like that. My brain isn't super original when it comes to names. Anyways, I was in her office with my husband and I was crying and telling her all about my life and talking about how nothing I'm doing seems to be working. She nodded gravely and told me it was because all I was doing was re-painting my porch. Stay with me, guys. This is where shit gets real. I was like, "This sounds like another mindfulness exercise that isn't going to help," and she told me that those exercises helped you recognize the chips in your porch paint and the other general wear and tear. What the heck, right? She gave me a workbook and told me I needed to do the homework before she saw me again the next day. In my dream, I went home and grumbled about having to do some more pointless analogy therapy that ultimately would do nothing for me. I then opened the workbook and what was in there was fascinating.
The Porch Theory is this idea that your life is built like a porch. (I need to add here that I am not a carpenter, have built stage set pieces, and am fully aware that what follows is not actually a good way to build a porch.) There is a poured foundation made of concrete. On top are four main support beams. Covering those are the long pieces of wood that make up the porch. Then comes the stain/paint and the decorations. Each part of the porch represents something different. The foundation is what your every action stems from. This is the root cause of everything you do. Then the foundation beams are the four main focuses your brain has. The long pieces of wood are your values that stem from those main focuses (which are influenced by the foundation). And then comes the paint/stain, which is the actions that you do and your outward symptoms, caused by the values which stem from the focuses that are influenced by the foundation.
In my dream, I did two written exercises. The first was to analyze my life starting from the paint and working my way back to the foundation. Then I labeled a diagram of my current "porch" with what I had written. This exercise took a long time, even in dream world. I ended up skipping around to the different parts of the "porch" as I tried to make sense of everything. The end result was me staring at this "porch," feeling as though I had been laid bare onto paper. My paint, the outward manifestation of my inward life, included like "people pleaser," "excessive apologizing," "panic and anxiety attacks," "sobbing," "anger towards my health," "shame over needing mobility devices, medications, etc," and "going to countless doctor appointments even though I know this doctor isn't the one for me." I could go on, but you get the point. The long pieces of wood, the values, were things like "religion," "putting family and friends above health," "getting the highest education possible," "being the best," "keeping a clean house at all costs," "forcing my body to stay healthy as much as possible," and "working a good job". The four main support beams were "Not wanting to be abandoned," "Not wanting anyone to regret being around me," "Not wanting to be a burden," and "Thinking everyone else deserves more/better than I do." My foundation was Fear and Worthlessness.
After I did this exercise, I found myself back in the dream therapist's office, sobbing and holding my husband's hands as I told her all about my porch. What could I do? This seemed like a horrible life I'd created for myself, and I felt hopeless about it.
She told me that yes, this is a terrible porch. It is, at its foundation, flawed. She told me that I couldn't expect a beautiful life when my thinking was all stemming from places of fear and worthlessness the same way that I shouldn't expect a porch with a nasty, cracked foundation and rotting wood to be an amazing place to have lemonade and iced tea during the summer with my husband. She told me it wasn't my fault that my porch is shit. She jokingly told me that with the life I've lived, she was surprised the whole damn house hadn't fallen apart. I couldn't stop crying. She got down on my level, looked me in the eyes and quietly asked me if I was ready for a new porch. I told her yes, but how the hell do I do that? She nodded solemnly and said, "Renovations."
She then had me do the second exercise in the workbook. The second exercise was, "Describe your dream porch (aka ideal life/values/etc.). My dream porch's outward appearance were things like "singing in the shower again," and "smiling," and "enjoying time with friends," and "happiness," and "baking" and "painting". My porch boards, my values, were made up of "Living in the moment," "Gratefulness," "Finding contentment," "Loving friends," "Relationship with husband," and others I can't remember right now. The four beams were "mental health," "healthy marriage," "physical health," and "hope." And the foundation? It was Self Love.
Sounds great, right? But how to get there? SallySusan the Dream Therapist was a little hazy on this one, but told me that every time I am having an outward symptom or thought that echoes the nasty porch, to think of the ideal porch and try to follow along with what I think that would look like. For example, if I find myself crying over how messy the house is, I should take a step back and realize that this comes from that gross foundation. I can then try to remind myself of how I want to be thinking. AKA, "Yes, the house is messy but it actually isn't hurting anyone and hey, isn't it great that husband and I have been resting and going places and having fun and yeah, we haven't had time to clean the house but look at all we've done this week!" or "Yes, the house is messy but it actually isn't hurting anyone and if it is, I can ask husband for help because I don't have to do it all by myself and it isn't horrible to ask him to help and we could play music and it could actually be fun!" or "Yes, the house is messy but no, you haven't 'done nothing' all week, you've taken all your pills on time and rested your joints and remember that one time you pet your dog? That was pretty awesome! And it's okay to focus on your health. Remember those beams on your dream porch? It's okay." She told me that I was going to need to go right down to the foundation and change it and then the other changes would follow.
My dream therapist told me that this was going to be nasty, messy work. She told me to think of it like any renovation. There will be setbacks. She told me that any time I experience a setback while working toward this "new porch" and feel like I'll never get there, to just think of it as a construction issue and forgive myself. There might be termites living in the wood of the porch, waiting to be exposed. The renovation crew might take unexpected holidays and leave me with a shattered mess to work around for weeks. Maybe there's some electrical wiring that needs to be replaced. Perhaps we'll get the porch built and realize that the foundation was never actually touched, the crew just said they did it and we have to tear the whole thing apart again. She told me that just as re-making a foundation for a house or porch is ridiculously hard and irritating, re-making a foundation for my life will be, too. And just like porches continually need weather-proofing, the occasional board replacement, re-painting, and other regular maintenance, keeping myself healthy will require constant work. But she told me to look forward to the days when I can sit out on a nice porch, sipping iced tea on a lounger next to my husband and watching the sunset.
Although it was a dream, I'm going to follow along with the Porch Theory and see if it works. Feel free to join me. If you'd like, you can share your own "Dream Porch" with me in the comments or on my Facebook page, Instagram, or Twitter.
Tuesday, May 9, 2017
Clouds
The clouds are slowly parting. It's been several days since my last sobbing breakdown. I have appointments with doctors to see what is going on with my neck and spine. We're not sure if there's an issue there that needs to be addressed, or if this level of pain is my new normal. I get about 8 hours of awake time, and I can walk around and do things for about an hour total a day. The 8 hours are broken up into a five hour segment and a three hour segment, approximately. I sleep for the other 16 hours. And I'm "resting" for seven out of the eight hours. Sometimes I can "rest" sitting up, watching TV or reading a book. Those are good days. Other times, I need to be in bed, flat on my back, willing my neck muscles to relax, completely drugged on anti-nausea and other such meds. Because my husband works the night shift, I'm awake from around 10 PM until 1 AM (give or take a few hours either way). Then I sleep until he comes home and I'm awake from 8 or 9 AM until somewhere between noon and two. It isn't a totally strict schedule yet, and the dogs are having some issues adjusting to this new "sleeping while it is light out in the afternoon" schedule. Also, I keep having to erase whole sentences of this post because a very eager Jeph seems to want to blog by hitting the keyboard with his paws. I think he thinks I'm playing with a toy and he wants to play, too! One of these posts, I'll have to let him guest post.
Part of the clouds parting is that after a sobbing fit, I fell asleep for 19 hours and missed some doses of a medication that I'd been put on a couple of weeks prior to my meltdown. When I woke up, I felt like myself. It was like a fog of awful had been lifted. I thought perhaps it was exhaustion, but it turns out that particular medication was making me worse. I stopped taking it under close supervision by my husband. Finally, I'm starting to be able to calm my brain and heal. I've been able to begin to convince my brain that it is safe here again.
I am now finally able to look at my mental health care objectively and realize that I am not currently receiving the care that is best for me. I'm starting the process of making a change to a different care team. The person who has been diagnosing me and prescribing medications for me is not an actual Psychiatrist. She is a Licensed Nurse Practitioner who works alongside the Psychiatrists at the mental health clinic. Nothing against Licensed Nurse Practitioners, but I need a Psychiatrist. She even has continually admitted that she has no idea what she's doing with me and is stumped by me. And I've found out that the medication that I've stopped wasn't even for any of the symptoms I've been experiencing. Also, the Psychologist that I've been seeing also told me this past week that she has no idea what to do with me going forward and that my symptoms are severe enough that they are out of her realm of expertise. So here we go, trying to get a new care team.
I had a three hour long, several phone call evaluation from my insurance. They're trying to get me enrolled in their Case Management program so that I can have someone working with me side by side to get all the specialists and referrals and help that I need. It was quite a depressing evaluation, as I had to go through all my symptoms and all my different systems and explain how and where and why they are failing. But after the phone call, I suddenly felt strangely empowered. No wonder I'm breaking down! No wonder I sleep 16 hours a day! No wonder I need a wheelchair! No wonder I can't do what everyone else can! Look at everything I deal with on a daily basis! Look at all I manage to do in spite of this! Look at how I can still drink water, take the dogs out, change the laundry, keep up with personal hygiene, and more. Sometimes, I can even make myself sandwiches or heat up leftovers. And you know, I'm going to go back to being proud of that. I'm going to work on being proud of myself again.
And speaking of being proud, I just looked up from my screen and my dogs are so proud of themselves because they found a rip in an old dog bed and have scattered the stuffing all over the living room floor. They are so happy destroying their bed. I hope they'll continue to be happy with they realize that they are responsible for that bed getting thrown in the trash.
Until next time, friends. Stay safe,
Part of the clouds parting is that after a sobbing fit, I fell asleep for 19 hours and missed some doses of a medication that I'd been put on a couple of weeks prior to my meltdown. When I woke up, I felt like myself. It was like a fog of awful had been lifted. I thought perhaps it was exhaustion, but it turns out that particular medication was making me worse. I stopped taking it under close supervision by my husband. Finally, I'm starting to be able to calm my brain and heal. I've been able to begin to convince my brain that it is safe here again.
I am now finally able to look at my mental health care objectively and realize that I am not currently receiving the care that is best for me. I'm starting the process of making a change to a different care team. The person who has been diagnosing me and prescribing medications for me is not an actual Psychiatrist. She is a Licensed Nurse Practitioner who works alongside the Psychiatrists at the mental health clinic. Nothing against Licensed Nurse Practitioners, but I need a Psychiatrist. She even has continually admitted that she has no idea what she's doing with me and is stumped by me. And I've found out that the medication that I've stopped wasn't even for any of the symptoms I've been experiencing. Also, the Psychologist that I've been seeing also told me this past week that she has no idea what to do with me going forward and that my symptoms are severe enough that they are out of her realm of expertise. So here we go, trying to get a new care team.
I had a three hour long, several phone call evaluation from my insurance. They're trying to get me enrolled in their Case Management program so that I can have someone working with me side by side to get all the specialists and referrals and help that I need. It was quite a depressing evaluation, as I had to go through all my symptoms and all my different systems and explain how and where and why they are failing. But after the phone call, I suddenly felt strangely empowered. No wonder I'm breaking down! No wonder I sleep 16 hours a day! No wonder I need a wheelchair! No wonder I can't do what everyone else can! Look at everything I deal with on a daily basis! Look at all I manage to do in spite of this! Look at how I can still drink water, take the dogs out, change the laundry, keep up with personal hygiene, and more. Sometimes, I can even make myself sandwiches or heat up leftovers. And you know, I'm going to go back to being proud of that. I'm going to work on being proud of myself again.
And speaking of being proud, I just looked up from my screen and my dogs are so proud of themselves because they found a rip in an old dog bed and have scattered the stuffing all over the living room floor. They are so happy destroying their bed. I hope they'll continue to be happy with they realize that they are responsible for that bed getting thrown in the trash.
Until next time, friends. Stay safe,
Monday, April 3, 2017
So Many Updates
So it's been a hot minute since I've written a post. I know you've all been anxiously waiting for an update on my life and, more importantly, the lives of my fluffy children. So here it is.
If you're following me on Instagram, you know that baby Jeph has begun having Service Dog Training outings.
If you're following me on Instagram, you know that baby Jeph has begun having Service Dog Training outings.
As you can see, he is overjoyed to be following in his big sister's footsteps! When I take them places together, he copies her behavior. When he's by himself, he's not quite sure of what to do, but he still tries very hard.
Check out those ridiculously adorable eyes!
Riley is enjoying her new job as the Good Example, as well as her time off for naps. She does not quite like to wake up from said naps...
My favorite thing is the look of utter betrayal on her usually sweet and happy face when she realizes that she's been woken up for a picture. She's like, "Human, why? Human stahp."
I've been not writing posts because I got some news that I actually need a wheelchair permanently. I need a mechanical one. We're getting a manual wheelchair for travelling, but the doctor wants me to have an electric one to get around the house. It is a hard thing to wrap one's mind around, and I've written and discarded many a blog post about this news and my feelings on said news. I've come to the conclusion that it honestly really sucks to have mobility taken away, but a wheelchair is so that this declining mobility doesn't stop me from getting around. A wheelchair is a helper and a friend, even though the stigma of having one still exists. And what would I rather do: continue falling and crawling on the floor and having my husband have to walk me around the house or zip around on wheels and take the dogs on walks and get to see the world while sitting? I think I'm slowly making my peace with it. So watch for me yelling, "On your left!" while I zip by you Steve-Rogers-Style.
I've been put on Seroquel for my mental health. It's main side effect is drowsiness. And boy, have I been drowsy! I take it at night, as I get super loopy about twenty minutes after taking it and then it puts me right out. I sleep all the way through the night and then into the morning. And I feel like I'm slightly drunk the entire day until about a couple hours before it's time to take it again. I'm hoping that my body will adjust to this medication, as it's the best one I've tried. I'm taking it in conjunction with my very high dose of Effexor. There are some symptoms that are getting worse, but others are definitely stabilizing or even getting better. And so it goes with treating any kind of illness.
We bought a 2001 Red Corvette. I'm in love with it! It is so comfortable to ride in, and I'm loving working on it with my husband. I know nothing about cars, but I can follow directions well and I adore learning. It's been a long time since I've been able to work with my hands, and I get such a thrill from building and cleaning and unscrewing and all the things one can do with a tool chest. I've only ever built furniture and set pieces, but my husband has spent his life working on cars and is a very competent teacher.
Look at how proud he looks to be in our garage. This was the first day we brought him home, before we began to work on him to make him the best he can be.
Baby got back.
Currently, there is a really low-budget dubbed horror movie on TV. The "monster," if you can even call it that, is so ridiculous that I can't stop laughing every time it appears on the screen. What even was the Creature Designer thinking? Or Makeup Designer? I don't even know who or what is to blame for this atrocious attempt at scaring an audience. You'd think an Italian horror movie would be better than this, but nope. Oh, now we're visiting some creepy producer who has cameras everywhere and they're making it out to be like a cyber horror flick? I'm so confused. Oh, the creepy producer is in a wheelchair. Can't wait for him to get possessed and stand up or some other cliche. I've been loving these campy horror movies that have been on TV as well as some old favorites like Agatha Christie's Hercule Poirot with David Suchet as the main character and The Great British Baking Show. All are excellent distractions from pain and loneliness. Oh, wait guys, there is a creepy repairman in the house of the main character. I'll bet he's possessed or something. Main character (woman, actress) is going upstairs to check on her baby. There is a stranger watching the baby, but the stranger claims to be related to the regular babysitter. And the main character doesn't seem disturbed by ALL THESE STRANGE PEOPLE IN HER HOUSE. Also, the director keeps blaring heavy metal music at weird moments to show that something out of the ordinary is happening. But enough about this terrible excuse for a movie. Did y'all know that old episodes of Mystery Science Theater 3000 are on Hulu and Netflix? My husband and I really enjoy making fun of these silly movies, and MST3K adds in an excellent level of humor and entertainment to the wooden acting, bad camera angles, etc.
But now it's time to make some lunch. Hopefully I'll be able to write more consistent posts in the future. Love to you all!
Sunday, March 26, 2017
We Are The New Warriors
The more I think about it, the more I am convinced that I need to create a soundtrack playlist for my life. Doing the kind of things that chronic illness and mental illness warriors do on a daily basis requires superhero movie music. I mean, honestly. Someone without these things won't know how hard it is to fight with your own body and/or your own mind. It takes so much energy to get out of bed, brush teeth, style hair, make food, and other things that able-bodied and neurotypical people do in their routines. (I'm not sure if neurotypical is the proper term, as these things change a lot. What I mean is someone who is not fighting a mental illness. Feel free to correct me in the comments if the term has changed, and I will use the new term in future posts.)
Tonight, I looked over the reading my Psychologist has given me. I set my alarm to get up in time to get ready to go to my first Group Therapy session, prescribed by my Psychiatrist. I took my evening mind and body medications in order to be able to survive the night. I looked over my prescription papers that say that I medically need a wheelchair starting now. And all I could think as I did all this was action movie music swelling the way it does in every good action movie and the main character (me) saying epically, "Let's do this!" followed by the bass drop and subsequent fight music.
When we say we are warriors, we do not take that term lightly. We are not being overdramatic. We are not applying labels to things that don't deserve them. Someone who fights as hard as we do is a warrior. These illnesses take our blood, sweat, tears, friendships, families, future hopes, saliva, organs, awareness, and whatever else they want. And we fight tooth and nail to keep as many of those things as long as we can.
We are many. We are mighty. And if we ever get completely better, we'll dominate the world. But for now, we will take naps and continue to fight when we wake up.
Tonight, I looked over the reading my Psychologist has given me. I set my alarm to get up in time to get ready to go to my first Group Therapy session, prescribed by my Psychiatrist. I took my evening mind and body medications in order to be able to survive the night. I looked over my prescription papers that say that I medically need a wheelchair starting now. And all I could think as I did all this was action movie music swelling the way it does in every good action movie and the main character (me) saying epically, "Let's do this!" followed by the bass drop and subsequent fight music.
When we say we are warriors, we do not take that term lightly. We are not being overdramatic. We are not applying labels to things that don't deserve them. Someone who fights as hard as we do is a warrior. These illnesses take our blood, sweat, tears, friendships, families, future hopes, saliva, organs, awareness, and whatever else they want. And we fight tooth and nail to keep as many of those things as long as we can.
We are many. We are mighty. And if we ever get completely better, we'll dominate the world. But for now, we will take naps and continue to fight when we wake up.
Friday, March 17, 2017
10 Happy Things
While I am still over the moon about the new EDS research, there's too much other stuff going on in my medical world right now and I can't try to make sense of it enough to write a meaningful post. I'm so tired and so terrified of new physical and mental symptoms that are doing whatever the heck they are doing and I don't think I can handle talking about these things publicly yet.
So. Here's 10 Happy Things:
1. Guess what my baby Jeph learned to do? He can open doors all by himself! He opens the door to go outside to pee all on his own. This is huge, people! Huge! And today, he opened the fridge for me for the first time! Simply amazing. I love him.
2. Tonight, my husband's friends are coming to see us. We're going to dress fun and go out and hopefully have an excellent evening.
3. I put an automatically-spraying air freshener thing in our living room and also cleaned the floors and now our house does not smell like pee. And will continue to smell nice, unless Jeph leaves me a present or two.
4. I'm excited to take a really relaxing bath this afternoon. I'm going to put so many excellent oils in it and stretch out my angry muscles.
5. There is ice cream in my freezer and I'm going to eat so much of it.
6. I'm excited to get my hair touched up so that it continues to look amazing.
7. There's a huge conspiracy thing going on that Justin Bieber is a reptilian creature and it's the best news story I've ever seen ever. There are like videos and everything where people go, "RIGHT THERE! HE BLINKED LIKE A LIZARD!" It's honestly amazing and I am so here for this.
8. I'm so excited to get Jeph's "Service Dog In Training" vest in the mail. Then, we get to start practicing and training in public.
9. I have so many green outfits that I have options for this weekend! I can try a bunch of them on and then decide instead of being stuck with a green t-shirt or something.
10. Magnum just released a Cookies 'N Cream ice cream bar and I need it.
Love to you all.
So. Here's 10 Happy Things:
1. Guess what my baby Jeph learned to do? He can open doors all by himself! He opens the door to go outside to pee all on his own. This is huge, people! Huge! And today, he opened the fridge for me for the first time! Simply amazing. I love him.
2. Tonight, my husband's friends are coming to see us. We're going to dress fun and go out and hopefully have an excellent evening.
3. I put an automatically-spraying air freshener thing in our living room and also cleaned the floors and now our house does not smell like pee. And will continue to smell nice, unless Jeph leaves me a present or two.
4. I'm excited to take a really relaxing bath this afternoon. I'm going to put so many excellent oils in it and stretch out my angry muscles.
5. There is ice cream in my freezer and I'm going to eat so much of it.
6. I'm excited to get my hair touched up so that it continues to look amazing.
7. There's a huge conspiracy thing going on that Justin Bieber is a reptilian creature and it's the best news story I've ever seen ever. There are like videos and everything where people go, "RIGHT THERE! HE BLINKED LIKE A LIZARD!" It's honestly amazing and I am so here for this.
8. I'm so excited to get Jeph's "Service Dog In Training" vest in the mail. Then, we get to start practicing and training in public.
9. I have so many green outfits that I have options for this weekend! I can try a bunch of them on and then decide instead of being stuck with a green t-shirt or something.
10. Magnum just released a Cookies 'N Cream ice cream bar and I need it.
Love to you all.
Wednesday, March 15, 2017
GREAT NEWS FOR EDS ZEBRAS!
Today is a beautiful, gorgeous day! Today, new medical research articles are being published about Ehlers-Danlos Syndrome! The classifications and requirements have been updated for the first time since 1997! After 20 years, we finally have some new information! Twenty years, people! I'm over the moon. I can't wait to skim the medical articles when they become available to the public later today. A "layman's" version will be published in a few weeks for easier access for everyone.
Do you realize? Do you understand? This means there is updated information that doctors can read to understand how to treat us. This means those of us who have gone misdiagnosed and shoved to the side can be like, "OH LOOK! MEDICAL RESEARCH THAT YOU CAN READ THAT PROVES I HAVE AN ACTUAL PROBLEM IT IS RIGHT HERE LOOK AT IT!" It took me 25 years to be diagnosed properly, and with these new classifications, my type of EDS diagnosis might get altered slightly in order for me to get more specialized treatments.
The original classifications of "1,2,3" etc. have been replaced by acronyms and easily-understood diagnostic criteria. My "EDS Type 3 Hypermobility" would now just be called hEDS. How great is that? The others acronyms I've seen so far are cEDS (Classical) and vEDS (Vascular). Later today, the articles about the three main types (hEDS, cEDS, and vEDS) will come available to the public along with articles about the lesser-known types. I can't speak about those because I actually don't know what they are. I'm excited to find out and see if I fit those instead of hEDS. But if I stay with a hEDS diagnosis, I'm okay with that. But I digress. The point is, PUBLISHED NEW RESEARCH FOR THE FIRST TIME IN 20 YEARS!
There is even research on pregnancies and EDS. I know I've been very quiet about this kind of thing, but I absolutely cannot get pregnant currently. Is it possible for me to get pregnant? Yes. Is it horribly dangerous for me and my unborn child? Yes. Would we both die or be horribly destroyed for life if I didn't have an abortion? With the research from 1997, yes. What is this new research? I don't know, but I'm interested to read it! What a beautiful day it would be if the horror stories of women who have EDS dying in childbirth, losing their babies, and being wrecked and their baby being horribly hurt would disappear from the internet or be a rare case instead of the norm!
A week from tomorrow, I go to my doctor to talk about getting a wheelchair. If there are treatments that can reverse the damage my joints have endured or treatments that can slow that nastiness down, sign me up. Seriously.
The symbol for EDS is a Zebra. Zebra stripes on everything. Why? Because there is a famous quote by Dr. Theodore Woodward. Addressing medical students in the 1940s, he said, "When you hear hoofbeats, think of horses, not zebras." So many of us have been treated as confusing "horses" by doctors who get frustrated with us and shove us to the side and dismiss us when we explain that we're different from other "horses." When we finally realize we've been zebras all along, the relief at having a name for ourselves is incredible. Even more rare is finding a doctor who knows what to do with our zebra-ness. The more light this disgusting, debilitating, awful illness gets, the more research will go into it and the more treatments will be discovered and the more people will be positively affected and maybe someday those of us who are "Zebra Strong" will not be seen as burdens to doctors, but as human beings who have a terrible but treatable ailment.
Do you realize? Do you understand? This means there is updated information that doctors can read to understand how to treat us. This means those of us who have gone misdiagnosed and shoved to the side can be like, "OH LOOK! MEDICAL RESEARCH THAT YOU CAN READ THAT PROVES I HAVE AN ACTUAL PROBLEM IT IS RIGHT HERE LOOK AT IT!" It took me 25 years to be diagnosed properly, and with these new classifications, my type of EDS diagnosis might get altered slightly in order for me to get more specialized treatments.
The original classifications of "1,2,3" etc. have been replaced by acronyms and easily-understood diagnostic criteria. My "EDS Type 3 Hypermobility" would now just be called hEDS. How great is that? The others acronyms I've seen so far are cEDS (Classical) and vEDS (Vascular). Later today, the articles about the three main types (hEDS, cEDS, and vEDS) will come available to the public along with articles about the lesser-known types. I can't speak about those because I actually don't know what they are. I'm excited to find out and see if I fit those instead of hEDS. But if I stay with a hEDS diagnosis, I'm okay with that. But I digress. The point is, PUBLISHED NEW RESEARCH FOR THE FIRST TIME IN 20 YEARS!
There is even research on pregnancies and EDS. I know I've been very quiet about this kind of thing, but I absolutely cannot get pregnant currently. Is it possible for me to get pregnant? Yes. Is it horribly dangerous for me and my unborn child? Yes. Would we both die or be horribly destroyed for life if I didn't have an abortion? With the research from 1997, yes. What is this new research? I don't know, but I'm interested to read it! What a beautiful day it would be if the horror stories of women who have EDS dying in childbirth, losing their babies, and being wrecked and their baby being horribly hurt would disappear from the internet or be a rare case instead of the norm!
A week from tomorrow, I go to my doctor to talk about getting a wheelchair. If there are treatments that can reverse the damage my joints have endured or treatments that can slow that nastiness down, sign me up. Seriously.
The symbol for EDS is a Zebra. Zebra stripes on everything. Why? Because there is a famous quote by Dr. Theodore Woodward. Addressing medical students in the 1940s, he said, "When you hear hoofbeats, think of horses, not zebras." So many of us have been treated as confusing "horses" by doctors who get frustrated with us and shove us to the side and dismiss us when we explain that we're different from other "horses." When we finally realize we've been zebras all along, the relief at having a name for ourselves is incredible. Even more rare is finding a doctor who knows what to do with our zebra-ness. The more light this disgusting, debilitating, awful illness gets, the more research will go into it and the more treatments will be discovered and the more people will be positively affected and maybe someday those of us who are "Zebra Strong" will not be seen as burdens to doctors, but as human beings who have a terrible but treatable ailment.
Monday, March 13, 2017
The Good, The Bad, And The Jeph
I've been officially diagnosed with PTSD. I was right. This is bad news because, well, obviously I'm going to have this for life and it really, really sucks. This is good news because it means I have treatment options and support groups and everything I need to cope. I started a new mood stabilizer on Saturday, and so far the only side effect I've experienced has been my eyes jumping around and not focusing as well as I'd like them to. But my mood...guys...my mood swings have gone dramatically down in just three days of this medication! So good. And the noise in my head has lessened maybe five percent, which is a small but noticeable difference.
In not so great news, I have something else besides PTSD. The doctor is not certain what it is yet, and wants to treat the PTSD first and foremost so that she can get a more clear picture as to the symptoms that are part of the separate disorder. She warned me that it is one of the bad ones. The ones people hate to be diagnosed with. She comforted me with the knowledge that whatever it is, she will find it out and there will be treatments for it. She also ruled out Schizophrenia, which was a huge relief. She said it is probably a dissociative disorder, and that it is not at all unusual that a disorder like that accompanies the PTSD. My brain is resorting to child-like coping skills to deal with the overload of trauma messages it is processing. Children run away from problems, make up stories, ignore things until they go away, etc. and my brain is doing these kinds of things without my knowledge, causing black-outs, voices, and all the other terrifying things that aren't the horror that I'm already dealing with caused by the PTSD. It is also possible that the PTSD diagnosis will eventually be changed to C-PTSD, or Complex Post Traumatic Stress Disorder, as I've had several traumas and not just a singular event. Also, my Night Terrors have become more pronounced, with me scaring my husband half to death by waking up screaming bloody murder. We're not sure if that is a side effect of the mood stabilizer or a new symptom, but it's not very fun for either of us. The dogs are both so used to me that they just lift their heads up like, "You good, bro? You need us? No? Okay," and then they go back to sleep.
SPEAKING OF DOGS! Jeph. You guys. Jeph. My little three month old fur baby has started taking care of me during attacks without any training whatsoever from me! How is this possible, you ask? Riley trained him. That's right, folks. Riley showed him what to do time and time again and he learned. On Saturday, I was lying on the couch in such a way that Riley couldn't quite get to me without injuring me. She nudged Jeph and he put his toy down, hopped up on the couch, walked up my body to my face, and licked my tears off. He noticed some tears had gone down onto my neck and he got those, too. Riley made a sound at him and he then laid down on me and kneaded my body with his head and paws until I stopped crying. He stayed on me and whined until I pet him, calming me further. Finally, we fell asleep together on the couch. Riley fell asleep on the floor, confident that her human was taken care of. He also insists I pick him up when I am pacing around the house, trapped in a manic episode. What a great little guy! He's still a little terror, eating the couch, knocking things off tables, eating laundry, and jumping up on me with his sharp little claws. But he is also coming along so well with his training. He is learning to walk by my side in a harness that he only hated for a few minutes. He is learning to be a calm, well-behaved little one. And now, thanks to Riley's guidance, I know he can perform some service dog tasks, and I'm eager to see what he can do when I actually train him!
It's been a weekend, y'all. But I'm hopeful for a future that will be difficult but doable. A future full of hard healing and many, many puppy cuddles.
Wednesday, March 8, 2017
Psych!
Yesterday, I went to a two hour psychiatry intake appointment. It was the most terrifying thing I have ever done. It is right up there with surgeries, teeth extractions, and staying in a room where there is a spider on the wall.
The building itself was probably the most run-down, creepy building I've seen. Think in your head of all the horror movies with psych hospitals, and then you have an idea of what I had to willingly walk in to. I almost couldn't get out of the taxi, as I was struck with such a paralyzing terror. I had been shaking all morning, and the moment I saw my destination, I couldn't breathe. Riley nudged me and made me get out of the car. She took me all the way to a building at the back of the creepy campus where the main entrance apparently was. She guarded me immediately upon entering, and did not stop guarding me for the next two and a half hours. If that doesn't tell you how awful the building was, I don't know what will. After getting registered at a run-down desk with people's pen marks all over it, I was led to a nurses' room to get my vitals checked. It was completely dark inside, as the nurses inside I guess don't believe in turning on the overhead lights. They took my vitals to the tune of someone's mixtape playing angrily in the background. I waited in a run-down, nasty waiting room. Then the grey clouds parted, so to speak, as I met the nurse who was going to be conducting my intense interview. She was a lovely person, and showed no signs of judgement no matter what I said. Her approach allowed me to open up and be incredibly honest with her the way I am honest with people I have known for years. After the interview, I had to wait in a nasty waiting room again for an appointment to get made, and guess who is returning to that awful building tomorrow for another two hour appointment where I will get a diagnosis and maybe some new medications? Me.
Last night, I broke down sobbing. I asked my husband what would happen if the diagnosis was something worse than what we thought. My loving husband held me and told me it wouldn't make a difference. He told me that we would just have a label for what is wrong and more possible treatments. He assured me he would stay with me no matter what and that we would get through the upcoming storms together, just as we have all the previous ones. I don't know what I would do without him as my rock. I never understood what people meant when they said things like "he is my rock" until I was married to him.
So listen up, hallucinations, voices, racing thoughts, flashbacks, panic, blank-out episodes, and everything else in my head. We're coming for you. Even if I have to go to every single creepy building in the world.
The building itself was probably the most run-down, creepy building I've seen. Think in your head of all the horror movies with psych hospitals, and then you have an idea of what I had to willingly walk in to. I almost couldn't get out of the taxi, as I was struck with such a paralyzing terror. I had been shaking all morning, and the moment I saw my destination, I couldn't breathe. Riley nudged me and made me get out of the car. She took me all the way to a building at the back of the creepy campus where the main entrance apparently was. She guarded me immediately upon entering, and did not stop guarding me for the next two and a half hours. If that doesn't tell you how awful the building was, I don't know what will. After getting registered at a run-down desk with people's pen marks all over it, I was led to a nurses' room to get my vitals checked. It was completely dark inside, as the nurses inside I guess don't believe in turning on the overhead lights. They took my vitals to the tune of someone's mixtape playing angrily in the background. I waited in a run-down, nasty waiting room. Then the grey clouds parted, so to speak, as I met the nurse who was going to be conducting my intense interview. She was a lovely person, and showed no signs of judgement no matter what I said. Her approach allowed me to open up and be incredibly honest with her the way I am honest with people I have known for years. After the interview, I had to wait in a nasty waiting room again for an appointment to get made, and guess who is returning to that awful building tomorrow for another two hour appointment where I will get a diagnosis and maybe some new medications? Me.
Last night, I broke down sobbing. I asked my husband what would happen if the diagnosis was something worse than what we thought. My loving husband held me and told me it wouldn't make a difference. He told me that we would just have a label for what is wrong and more possible treatments. He assured me he would stay with me no matter what and that we would get through the upcoming storms together, just as we have all the previous ones. I don't know what I would do without him as my rock. I never understood what people meant when they said things like "he is my rock" until I was married to him.
So listen up, hallucinations, voices, racing thoughts, flashbacks, panic, blank-out episodes, and everything else in my head. We're coming for you. Even if I have to go to every single creepy building in the world.
Wednesday, March 1, 2017
I'm So Tired And The House Is So Messy
I'm so tired. And the house is disgusting. Small pieces of dog toys litter the floors. I can't remember what my bedroom floor looks like. The side room doors are closed, partly so the puppy won't pee in there, but really because there is so much work to be done in each room and it is easier to just close the doors and forget about it. The dust bunnies took our brief trip as an excuse to multiply at alarming rates. And the dogs happily pooped all over the backyard. In one day, the grass is hardly visible and the nasty smell coming from the backyard is enough to stun a small elephant. Add that to my inability to bend over due to neck pain and the abdominal hemorrhage and you've got the situation: me stuck on the couch as the house falls down around my ears. The dogs are eating trash they found under the bed. I attempted to teach Jeph two new commands today. One of them stuck. The other one...we'll work on it.
I might perhaps be able to dust some today. In the living room. So that is one out of like seven hundred things I need to do. Did I mention that I have a Colonoscopy/Endoscopy on Friday? Did I mention that most people have to go on the liquid diet for one day but I have to start it today? Did I mention that I ate breakfast this morning as my last meal for the week and it made me incredibly ill for no reason whatsoever? Did I mention that I'm on hospital-level mgs of Zofran in order to stay out of the bathroom? Send help, folks.
Of course my husband would help me with everything if I asked him, and he does so many things without me asking. He takes care of the trash and the dishes and takes care of Jeph in the evenings and I honestly don't know what I would do without him. Probably cry more.
But the point of this post is not to tell you that I've got an amazing husband. It is to tell you that I am feeling overwhelmed and tired and crabby and sick and that this is normal considering what my body is going through right now and that it is okay to feel these things and to let these feelings run their course so you can get past them and get back to living life. Which I will do. This post is at the height of feeling overwhelmed. Perhaps later today or tomorrow, you'll all get a post about how life doesn't suck as much as I thought it did in this particular moment. We will see.
Master To-Do List That You Are Not Expected To Read But I Wrote Out Because I Needed To Vent Somewhere:
1. Backyard poop pick-up
2. Dust Living Room
3. Dust Master Bedroom
4. Clean both bathrooms
5. Laundry
6. Dishes
7. Trash
8. Pick up all trash the dogs have scattered all over the house
9. Throw away the old flowers on the dining table
10. Get Jeph humping Riley's head on camera because it is hilarious and he does it when she takes his toys
11. Write a blog post that doesn't suck
12. Clean Kitchen counters
13. Clean Dining Room table
14. Vacuum and Baking Soda Master Bedroom
15. Re-learn rules of capitalization because this post is a mess as far as that is concerned
16. Put all the weird stuff that found its way into the Living Room away
17. Swiffer (the wet steamer one) the hardwood floors
18. Give Jeph a bath because he smells like pee again
19. Clean Jeph's kennel because that's probably where that awful smell is originating from
20. Put the ten loads of clean laundry that are hiding in the first side room away
21. Clean both side rooms so they are useable and we have company coming in a few weeks and also maybe we can shove the dogs in one of the rooms occasionally to play
22. Vacuum both side rooms
23. Take all the papers that haven't been filed and file them already for goodness' sake
24. Re-organize the side room closets because they are gross right now
25. Continue to teach Jeph "Down" and "Lay Down" this week as well as reinforcing "Sit," "Leave It," and "Quiet."
26. Cry over how long this list is and how you're literally only going to be able to do maybe two things off of this list.
I might perhaps be able to dust some today. In the living room. So that is one out of like seven hundred things I need to do. Did I mention that I have a Colonoscopy/Endoscopy on Friday? Did I mention that most people have to go on the liquid diet for one day but I have to start it today? Did I mention that I ate breakfast this morning as my last meal for the week and it made me incredibly ill for no reason whatsoever? Did I mention that I'm on hospital-level mgs of Zofran in order to stay out of the bathroom? Send help, folks.
Of course my husband would help me with everything if I asked him, and he does so many things without me asking. He takes care of the trash and the dishes and takes care of Jeph in the evenings and I honestly don't know what I would do without him. Probably cry more.
But the point of this post is not to tell you that I've got an amazing husband. It is to tell you that I am feeling overwhelmed and tired and crabby and sick and that this is normal considering what my body is going through right now and that it is okay to feel these things and to let these feelings run their course so you can get past them and get back to living life. Which I will do. This post is at the height of feeling overwhelmed. Perhaps later today or tomorrow, you'll all get a post about how life doesn't suck as much as I thought it did in this particular moment. We will see.
Master To-Do List That You Are Not Expected To Read But I Wrote Out Because I Needed To Vent Somewhere:
1. Backyard poop pick-up
2. Dust Living Room
3. Dust Master Bedroom
4. Clean both bathrooms
5. Laundry
6. Dishes
7. Trash
8. Pick up all trash the dogs have scattered all over the house
9. Throw away the old flowers on the dining table
10. Get Jeph humping Riley's head on camera because it is hilarious and he does it when she takes his toys
11. Write a blog post that doesn't suck
12. Clean Kitchen counters
13. Clean Dining Room table
14. Vacuum and Baking Soda Master Bedroom
15. Re-learn rules of capitalization because this post is a mess as far as that is concerned
16. Put all the weird stuff that found its way into the Living Room away
17. Swiffer (the wet steamer one) the hardwood floors
18. Give Jeph a bath because he smells like pee again
19. Clean Jeph's kennel because that's probably where that awful smell is originating from
20. Put the ten loads of clean laundry that are hiding in the first side room away
21. Clean both side rooms so they are useable and we have company coming in a few weeks and also maybe we can shove the dogs in one of the rooms occasionally to play
22. Vacuum both side rooms
23. Take all the papers that haven't been filed and file them already for goodness' sake
24. Re-organize the side room closets because they are gross right now
25. Continue to teach Jeph "Down" and "Lay Down" this week as well as reinforcing "Sit," "Leave It," and "Quiet."
26. Cry over how long this list is and how you're literally only going to be able to do maybe two things off of this list.
Wednesday, February 22, 2017
Things Learned While Travelling Part 1
Things I Have Learned By Travelling Part 1:
-People are mostly self-centered when in airports and will knock service dogs out of their way to get to their gates.
-McDonald's is good everywhere.
-I hate talking to people on planes.
-So many people refuse to read "Do Not Pet" signs.
-TSA agents are sweethearts who are usually dog lovers and who are doing a thankless job.
-DFW is the Devil. I have found Hell, and it is consistently located in the bowels of the Dallas-Fort Worth International Airport.
-Any airport that claims to have services to accommodate disabilities really just means that they have an elevator somewhere and some dirty wheelchairs that don't actually function and maybe someone who doesn't communicate well to drive you to a random gate.
-Riley is one of the most well-behaved Service Dogs in an airport at any given time.
-People love Riley and will run me over to ask her how she is and if she is a good dog.
-People think that if someone has a Service Dog, it is okay to interrupt their private conversations to loudly inquire about said dog.
-My husband is still my hero and gets even more annoyed than I do with the stuff disabled travellers have to put up with.
-Chick-Fil-A will give you a plain grilled chicken patty for your dog if you ask (yes, you pay for it).
-We need more USO rooms in DFW. PLEASE.
-Travelling with people who know what they're doing or travelling by yourself are the best ways to travel. Unless you like stress and adults acting like tired toddlers.
-Watching CNN while waiting to board does not help with travel stress (AAAAAAAAAAA).
-Always wear loose-fitting clothes and say "screw it" to bras and belts. Put a sweater or jacket on over that business and be comfy. You'll thank me later.
-Empty water bottles that can be filled up after security are invaluable unless you like paying outrageous amounts of money for airport water.
-Be prepared (Scar or Boy Scouts version).
-No one can pronounce my last name.
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