Y'all, I had a dream two nights ago and I just can't stop thinking about it. This dream has radically changed how I think about my life. I woke up today thinking about it again and it's been three hours and I can't sleep or stop thinking about it so I think I'll share. Bear with me as dreams are weird and hazy and confusing, but hopefully you can follow along.
In my dream, I had a session with a famous therapist. Famous therapist's name was Sally or Susan or something like that. My brain isn't super original when it comes to names. Anyways, I was in her office with my husband and I was crying and telling her all about my life and talking about how nothing I'm doing seems to be working. She nodded gravely and told me it was because all I was doing was re-painting my porch. Stay with me, guys. This is where shit gets real. I was like, "This sounds like another mindfulness exercise that isn't going to help," and she told me that those exercises helped you recognize the chips in your porch paint and the other general wear and tear. What the heck, right? She gave me a workbook and told me I needed to do the homework before she saw me again the next day. In my dream, I went home and grumbled about having to do some more pointless analogy therapy that ultimately would do nothing for me. I then opened the workbook and what was in there was fascinating.
The Porch Theory is this idea that your life is built like a porch. (I need to add here that I am not a carpenter, have built stage set pieces, and am fully aware that what follows is not actually a good way to build a porch.) There is a poured foundation made of concrete. On top are four main support beams. Covering those are the long pieces of wood that make up the porch. Then comes the stain/paint and the decorations. Each part of the porch represents something different. The foundation is what your every action stems from. This is the root cause of everything you do. Then the foundation beams are the four main focuses your brain has. The long pieces of wood are your values that stem from those main focuses (which are influenced by the foundation). And then comes the paint/stain, which is the actions that you do and your outward symptoms, caused by the values which stem from the focuses that are influenced by the foundation.
In my dream, I did two written exercises. The first was to analyze my life starting from the paint and working my way back to the foundation. Then I labeled a diagram of my current "porch" with what I had written. This exercise took a long time, even in dream world. I ended up skipping around to the different parts of the "porch" as I tried to make sense of everything. The end result was me staring at this "porch," feeling as though I had been laid bare onto paper. My paint, the outward manifestation of my inward life, included like "people pleaser," "excessive apologizing," "panic and anxiety attacks," "sobbing," "anger towards my health," "shame over needing mobility devices, medications, etc," and "going to countless doctor appointments even though I know this doctor isn't the one for me." I could go on, but you get the point. The long pieces of wood, the values, were things like "religion," "putting family and friends above health," "getting the highest education possible," "being the best," "keeping a clean house at all costs," "forcing my body to stay healthy as much as possible," and "working a good job". The four main support beams were "Not wanting to be abandoned," "Not wanting anyone to regret being around me," "Not wanting to be a burden," and "Thinking everyone else deserves more/better than I do." My foundation was Fear and Worthlessness.
After I did this exercise, I found myself back in the dream therapist's office, sobbing and holding my husband's hands as I told her all about my porch. What could I do? This seemed like a horrible life I'd created for myself, and I felt hopeless about it.
She told me that yes, this is a terrible porch. It is, at its foundation, flawed. She told me that I couldn't expect a beautiful life when my thinking was all stemming from places of fear and worthlessness the same way that I shouldn't expect a porch with a nasty, cracked foundation and rotting wood to be an amazing place to have lemonade and iced tea during the summer with my husband. She told me it wasn't my fault that my porch is shit. She jokingly told me that with the life I've lived, she was surprised the whole damn house hadn't fallen apart. I couldn't stop crying. She got down on my level, looked me in the eyes and quietly asked me if I was ready for a new porch. I told her yes, but how the hell do I do that? She nodded solemnly and said, "Renovations."
She then had me do the second exercise in the workbook. The second exercise was, "Describe your dream porch (aka ideal life/values/etc.). My dream porch's outward appearance were things like "singing in the shower again," and "smiling," and "enjoying time with friends," and "happiness," and "baking" and "painting". My porch boards, my values, were made up of "Living in the moment," "Gratefulness," "Finding contentment," "Loving friends," "Relationship with husband," and others I can't remember right now. The four beams were "mental health," "healthy marriage," "physical health," and "hope." And the foundation? It was Self Love.
Sounds great, right? But how to get there? SallySusan the Dream Therapist was a little hazy on this one, but told me that every time I am having an outward symptom or thought that echoes the nasty porch, to think of the ideal porch and try to follow along with what I think that would look like. For example, if I find myself crying over how messy the house is, I should take a step back and realize that this comes from that gross foundation. I can then try to remind myself of how I want to be thinking. AKA, "Yes, the house is messy but it actually isn't hurting anyone and hey, isn't it great that husband and I have been resting and going places and having fun and yeah, we haven't had time to clean the house but look at all we've done this week!" or "Yes, the house is messy but it actually isn't hurting anyone and if it is, I can ask husband for help because I don't have to do it all by myself and it isn't horrible to ask him to help and we could play music and it could actually be fun!" or "Yes, the house is messy but no, you haven't 'done nothing' all week, you've taken all your pills on time and rested your joints and remember that one time you pet your dog? That was pretty awesome! And it's okay to focus on your health. Remember those beams on your dream porch? It's okay." She told me that I was going to need to go right down to the foundation and change it and then the other changes would follow.
My dream therapist told me that this was going to be nasty, messy work. She told me to think of it like any renovation. There will be setbacks. She told me that any time I experience a setback while working toward this "new porch" and feel like I'll never get there, to just think of it as a construction issue and forgive myself. There might be termites living in the wood of the porch, waiting to be exposed. The renovation crew might take unexpected holidays and leave me with a shattered mess to work around for weeks. Maybe there's some electrical wiring that needs to be replaced. Perhaps we'll get the porch built and realize that the foundation was never actually touched, the crew just said they did it and we have to tear the whole thing apart again. She told me that just as re-making a foundation for a house or porch is ridiculously hard and irritating, re-making a foundation for my life will be, too. And just like porches continually need weather-proofing, the occasional board replacement, re-painting, and other regular maintenance, keeping myself healthy will require constant work. But she told me to look forward to the days when I can sit out on a nice porch, sipping iced tea on a lounger next to my husband and watching the sunset.
Although it was a dream, I'm going to follow along with the Porch Theory and see if it works. Feel free to join me. If you'd like, you can share your own "Dream Porch" with me in the comments or on my Facebook page, Instagram, or Twitter.
Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts
Friday, June 2, 2017
Sunday, April 30, 2017
Everything Is Grey
I'm in the midst of the worst mental health breakdown I have ever experienced. I say this honestly. I say this not to solicit sympathy or pity. I say it because I think that honesty goes a long way with those of you who have come here to read about my life. I do not have an Instagram-perfect life. (If you follow me on Instagram, you know everything is heavily filtered and mostly is pictures of my dogs). I'm not one of those military wives who writes about attending military balls and taking advantage of all the opportunities that military life has to offer. I have zero things against those types of military wives. Sometimes I wish I was one of them. I envy them and their ability to wake up and get out of bed and walk more than a block without having to sit or ride in a wheelchair. I admire their ability to cook for their families, decorate for holidays, keep their kids dressed and alive and healthy, etc. In contrast, today I brushed my hair for the first time in seven days. I'm not joking when I say that this was a monumental task. Talk about knots. It was pretty gross. Thankfully, I had the presence of mind to use a lot of conditioner and a hair mask before attempting to unsnarl the mass that my ponytail had become.
My Psychiatrist told me that I need to treat this like the flu. Lots of fluids, lots of rest, watch a lot of movies and TV, and be nice to my body. I bought a bunch of food that I usually love, because otherwise I can't attempt myself to swallow even one bite. My poor anxious stomach can't handle the idea of a full plate or even a half-full bowl of cereal. I've dropped at least five pounds in the past few days and it's not a good kind of weight loss. I've slept for over eighteen hours a day every day and I'm still so exhausted that my entire body is pretty much constantly shaking and I'm seeing double.
I won't go into what is going on in my brain simply because it is too triggering to me and to others who have similar issues. Let's just say it is hell and leave it at that.
I'm safe. I have 24/7 monitoring and I have to show my husband my pills and show him me taking those pills and I have an action plan and lots of resources when I need them. I say when, not if, because I 1000% need them. Believe me, this is not an "if" time.
My Psychiatrist also told me that I'm actively going through new trauma right now. I also looked up my medications and they're medicating me pretty heavily, apparently. It seems as though the combo that I'm on is used to treat some real nasty things. She looked at my eyes and saw me losing my mind sobbing and told me I need to get into intensive treatment as soon as possible. She called my insurance company and is working with them to get me into a Partial Hospitalization Program and a DBT program. She helped me set up the safety plan and the action plan and if those fail, she told me she wants me in the hospital. Right now they seem to be working okay, so that's nice I guess.
We had people over for a barbecue and it was actually really nice. Lots of laughter. I felt like I was playing the part of a happy person, but even that was nice. It forced me to take a shower and put on real clothes and talk to people. I didn't have any energy to do makeup or care about outfits or anything, but it was still good for me to try to interact with normal humans. It was exhausting, and I'll probably be more "sick" tomorrow, but I still think it was good for me. And it was definitely good for my husband to laugh and grill and tease and eat with his friends. He's been so steady and supportive this week, and it was comforting to see him let go and have a good time.
I'm wearing my new PTSD bracelet constantly. A local first responder makes these bracelets as a way of coping with his PTSD and as a helpful tool for the PTSD community. The beaded bracelet has a bunch of normal beads and one skull bead. The skull bead represents the trauma. The rest of the beads represent blessings. You're supposed to go around the bracelet, naming all the blessings in your life with each normal bead and reflecting on the trauma in order to let it go when you reach the skull bead. It's actually a rather helpful visual, as it is obvious that the skull bead is hopelessly outnumbered by the blessings beads. Even though it is horrifically difficult for me to name blessings right now, the act of forcing my brain to try to think of positive things is healing.
I'm not sure when I'll be writing another post. Thank you all for bearing with me with the sporadic posting of the past few months. I'm afraid I can't be certain of when I will have the energy to write again. Hopefully this nastiness passes soon, but everyone is warning me that it can last for a month or more. I think I'll run out of shows to binge-watch by then. Stay safe, friends. I'm off to hide under a blanket, watch Masterchef, and use up another Kleenex box. Love.
My Psychiatrist told me that I need to treat this like the flu. Lots of fluids, lots of rest, watch a lot of movies and TV, and be nice to my body. I bought a bunch of food that I usually love, because otherwise I can't attempt myself to swallow even one bite. My poor anxious stomach can't handle the idea of a full plate or even a half-full bowl of cereal. I've dropped at least five pounds in the past few days and it's not a good kind of weight loss. I've slept for over eighteen hours a day every day and I'm still so exhausted that my entire body is pretty much constantly shaking and I'm seeing double.
I won't go into what is going on in my brain simply because it is too triggering to me and to others who have similar issues. Let's just say it is hell and leave it at that.
I'm safe. I have 24/7 monitoring and I have to show my husband my pills and show him me taking those pills and I have an action plan and lots of resources when I need them. I say when, not if, because I 1000% need them. Believe me, this is not an "if" time.
My Psychiatrist also told me that I'm actively going through new trauma right now. I also looked up my medications and they're medicating me pretty heavily, apparently. It seems as though the combo that I'm on is used to treat some real nasty things. She looked at my eyes and saw me losing my mind sobbing and told me I need to get into intensive treatment as soon as possible. She called my insurance company and is working with them to get me into a Partial Hospitalization Program and a DBT program. She helped me set up the safety plan and the action plan and if those fail, she told me she wants me in the hospital. Right now they seem to be working okay, so that's nice I guess.
We had people over for a barbecue and it was actually really nice. Lots of laughter. I felt like I was playing the part of a happy person, but even that was nice. It forced me to take a shower and put on real clothes and talk to people. I didn't have any energy to do makeup or care about outfits or anything, but it was still good for me to try to interact with normal humans. It was exhausting, and I'll probably be more "sick" tomorrow, but I still think it was good for me. And it was definitely good for my husband to laugh and grill and tease and eat with his friends. He's been so steady and supportive this week, and it was comforting to see him let go and have a good time.
I'm wearing my new PTSD bracelet constantly. A local first responder makes these bracelets as a way of coping with his PTSD and as a helpful tool for the PTSD community. The beaded bracelet has a bunch of normal beads and one skull bead. The skull bead represents the trauma. The rest of the beads represent blessings. You're supposed to go around the bracelet, naming all the blessings in your life with each normal bead and reflecting on the trauma in order to let it go when you reach the skull bead. It's actually a rather helpful visual, as it is obvious that the skull bead is hopelessly outnumbered by the blessings beads. Even though it is horrifically difficult for me to name blessings right now, the act of forcing my brain to try to think of positive things is healing.
I'm not sure when I'll be writing another post. Thank you all for bearing with me with the sporadic posting of the past few months. I'm afraid I can't be certain of when I will have the energy to write again. Hopefully this nastiness passes soon, but everyone is warning me that it can last for a month or more. I think I'll run out of shows to binge-watch by then. Stay safe, friends. I'm off to hide under a blanket, watch Masterchef, and use up another Kleenex box. Love.
Thursday, March 2, 2017
Learning To Be Okay: Hostage Negotiations
This is another Learning To Be Okay post. A reminder that these posts are for me to help myself work through the issues that I am facing in my mental health battle and I will not be offended if you can't read further due to issues of your own. Be safe, loves. TW: Self harm, abuse, suicide
One of the major problems I have is that I cannot buy nice things for myself or do any basic self care without feeling an incredible amount of guilt. There is a tiny, evil voice in my head that tells me that I am not worth it. That I don't deserve it. And I'm talking anything from makeup to clothes to skincare to expensive medications to bath supplies to basic groceries. I don't deserve to put fruit I like on the grocery list. I don't deserve to ask for a gallon of milk if my husband isn't going to drink over half of it. Sometimes it even tries to convince me that I don't deserve to take my pills on time. I haven't suffered enough for the day, so I should put off taking my heart pills. I am well aware that it looks ridiculous on paper, because of course I should eat and take pills and have clothes without holes, but please understand that this tiny evil voice is so convincing and so present in every decision I make throughout the day that I have moments of weakness where I believe it. It is exhausting to continue a running dialogue with it all day, every day. But the lesson I have learned about this voice is that it is not the voice of rationality. It is not the voice of reason. It is not the voice of truth. It took a very long time to learn this lesson, and I have to continually remind myself that no, this voice is not one to listen to and take advice from. The day I realized this lesson, it felt like I'd awakened from a nasty nightmare. Before I realized what was happening, my inner dialogue went something like this:
"I'm thirsty."
"You just had a drink fifteen minutes ago. You don't deserve another sip of water for at least another hour. Do some damn work for the first time in your life."
"True. Okay. What more can I do?" *Works self into exhaustion* *Dehydrates self* *Doesn't understand why self is always sick and why self cannot just rest*
Many times, the disgusting voice would try to openly convince me that I didn't deserve to be alive. I'd breathed enough air for the hour, I'd hurt enough people, I was gross and disgusting and the world had tolerated me long enough. I was ill from EDS, yet no one believed me and I was told how horrible and attention-seeking I was. Wouldn't it be better to just end everything than to hurt my loved ones with my supposedly fake illnesses? You see how convincing this nasty voice can be. The first time I tried to kill myself, I was 11. The knife was going toward my body when my mom unexpectedly came home and I was afraid of being caught and dropped the knife and ran to the bathroom to throw up. I know it doesn't make sense, but I didn't go through with it because I didn't want to burden my mom with finding my dead body in the kitchen right when she came home. Several other times that year, I waited until the house was asleep, said goodbye to my stuffed animals, put the blankets over my head and then held my breath until I passed out, trying to will my body to kill itself. Thankfully, it did not work and I woke up and sobbed, partly from not knowing why I wanted to die so badly, and partly because I was still alive. I could never tell anyone about these things, because that would be burdening more people, and that was unacceptable.
Once I realized that this voice was out to destroy, not help, my dialogue changed. I no longer willingly let it control my life. It feels like a hostage negotiation with my body as the hostage and myself and the voice as the opposing parties, but it is so much better than blindly listening. For example, as I sit here, I am running a dialogue in my head that goes something like this:
"I'm thirsty."
"You just had a drink fifteen minutes ago. You don't deserve another drink for at least another hour."
"That's bullshit and you know it."
"...Is it? Are you sure?"
"I'm thirsty, my water is right next to me, I'm going to drink it."
"You need to finish this blog post first. You haven't earned a drink until you hit "Publish."
"Screw you." *Takes drink of water* "Oh, I have to use the bathroom."
"It doesn't hurt yet, you can wait. Or are you so weak you have to put your disgusting self in the bathroom more than once a day?"
"That...makes no sense. I'm going to the bathroom."
"Ok, fine, but good luck taking a shower today because you haven't done any housework."
"...Ugh."
I am aware of where this evil voice came from. I won't get into a lot of it here, mostly because I'm afraid to hurt people who may have unwittingly contributed to it. But I will say that I know that it stems from my fears of inadequacy, my inability to be perfect all the time. I will also say that if you have any interaction with children at all at any point in your life, encourage their uniqueness and their individual abilities, talents, and personalities. Be loving and safe. When children feel that the adults in their life are not safe unless they perform a certain way or act a certain way, it feeds that nasty voice that I would not wish on anyone. Children start to withdraw, which is sometimes mistakenly viewed as a sign of maturity. A child with no personality to speak of is a terrified, hiding child, not a well-behaved young person. You might be surprised how the children under your care actually grow if you prove yourself to be a safe adult. And if a child trusts you enough to let you see their true selves, do your damndest to not violate that trust. Teach your children not to bully. Bullying is not funny, it is not something all kids do, you are literally screwing with people's lives. Take your role as a parent or teacher or caregiver or relative or someone who sees a child occasionally seriously and be a safe person.
I am looking forward to getting more tools for dealing with this nasty voice from my new psychologist and possibly controlling it a bit more with medications my new psychiatrist might supply. But until then, I will continue the hostage negotiations.
One of the major problems I have is that I cannot buy nice things for myself or do any basic self care without feeling an incredible amount of guilt. There is a tiny, evil voice in my head that tells me that I am not worth it. That I don't deserve it. And I'm talking anything from makeup to clothes to skincare to expensive medications to bath supplies to basic groceries. I don't deserve to put fruit I like on the grocery list. I don't deserve to ask for a gallon of milk if my husband isn't going to drink over half of it. Sometimes it even tries to convince me that I don't deserve to take my pills on time. I haven't suffered enough for the day, so I should put off taking my heart pills. I am well aware that it looks ridiculous on paper, because of course I should eat and take pills and have clothes without holes, but please understand that this tiny evil voice is so convincing and so present in every decision I make throughout the day that I have moments of weakness where I believe it. It is exhausting to continue a running dialogue with it all day, every day. But the lesson I have learned about this voice is that it is not the voice of rationality. It is not the voice of reason. It is not the voice of truth. It took a very long time to learn this lesson, and I have to continually remind myself that no, this voice is not one to listen to and take advice from. The day I realized this lesson, it felt like I'd awakened from a nasty nightmare. Before I realized what was happening, my inner dialogue went something like this:
"I'm thirsty."
"You just had a drink fifteen minutes ago. You don't deserve another sip of water for at least another hour. Do some damn work for the first time in your life."
"True. Okay. What more can I do?" *Works self into exhaustion* *Dehydrates self* *Doesn't understand why self is always sick and why self cannot just rest*
Many times, the disgusting voice would try to openly convince me that I didn't deserve to be alive. I'd breathed enough air for the hour, I'd hurt enough people, I was gross and disgusting and the world had tolerated me long enough. I was ill from EDS, yet no one believed me and I was told how horrible and attention-seeking I was. Wouldn't it be better to just end everything than to hurt my loved ones with my supposedly fake illnesses? You see how convincing this nasty voice can be. The first time I tried to kill myself, I was 11. The knife was going toward my body when my mom unexpectedly came home and I was afraid of being caught and dropped the knife and ran to the bathroom to throw up. I know it doesn't make sense, but I didn't go through with it because I didn't want to burden my mom with finding my dead body in the kitchen right when she came home. Several other times that year, I waited until the house was asleep, said goodbye to my stuffed animals, put the blankets over my head and then held my breath until I passed out, trying to will my body to kill itself. Thankfully, it did not work and I woke up and sobbed, partly from not knowing why I wanted to die so badly, and partly because I was still alive. I could never tell anyone about these things, because that would be burdening more people, and that was unacceptable.
Once I realized that this voice was out to destroy, not help, my dialogue changed. I no longer willingly let it control my life. It feels like a hostage negotiation with my body as the hostage and myself and the voice as the opposing parties, but it is so much better than blindly listening. For example, as I sit here, I am running a dialogue in my head that goes something like this:
"I'm thirsty."
"You just had a drink fifteen minutes ago. You don't deserve another drink for at least another hour."
"That's bullshit and you know it."
"...Is it? Are you sure?"
"I'm thirsty, my water is right next to me, I'm going to drink it."
"You need to finish this blog post first. You haven't earned a drink until you hit "Publish."
"Screw you." *Takes drink of water* "Oh, I have to use the bathroom."
"It doesn't hurt yet, you can wait. Or are you so weak you have to put your disgusting self in the bathroom more than once a day?"
"That...makes no sense. I'm going to the bathroom."
"Ok, fine, but good luck taking a shower today because you haven't done any housework."
"...Ugh."
I am aware of where this evil voice came from. I won't get into a lot of it here, mostly because I'm afraid to hurt people who may have unwittingly contributed to it. But I will say that I know that it stems from my fears of inadequacy, my inability to be perfect all the time. I will also say that if you have any interaction with children at all at any point in your life, encourage their uniqueness and their individual abilities, talents, and personalities. Be loving and safe. When children feel that the adults in their life are not safe unless they perform a certain way or act a certain way, it feeds that nasty voice that I would not wish on anyone. Children start to withdraw, which is sometimes mistakenly viewed as a sign of maturity. A child with no personality to speak of is a terrified, hiding child, not a well-behaved young person. You might be surprised how the children under your care actually grow if you prove yourself to be a safe adult. And if a child trusts you enough to let you see their true selves, do your damndest to not violate that trust. Teach your children not to bully. Bullying is not funny, it is not something all kids do, you are literally screwing with people's lives. Take your role as a parent or teacher or caregiver or relative or someone who sees a child occasionally seriously and be a safe person.
I am looking forward to getting more tools for dealing with this nasty voice from my new psychologist and possibly controlling it a bit more with medications my new psychiatrist might supply. But until then, I will continue the hostage negotiations.
Wednesday, March 1, 2017
I'm So Tired And The House Is So Messy
I'm so tired. And the house is disgusting. Small pieces of dog toys litter the floors. I can't remember what my bedroom floor looks like. The side room doors are closed, partly so the puppy won't pee in there, but really because there is so much work to be done in each room and it is easier to just close the doors and forget about it. The dust bunnies took our brief trip as an excuse to multiply at alarming rates. And the dogs happily pooped all over the backyard. In one day, the grass is hardly visible and the nasty smell coming from the backyard is enough to stun a small elephant. Add that to my inability to bend over due to neck pain and the abdominal hemorrhage and you've got the situation: me stuck on the couch as the house falls down around my ears. The dogs are eating trash they found under the bed. I attempted to teach Jeph two new commands today. One of them stuck. The other one...we'll work on it.
I might perhaps be able to dust some today. In the living room. So that is one out of like seven hundred things I need to do. Did I mention that I have a Colonoscopy/Endoscopy on Friday? Did I mention that most people have to go on the liquid diet for one day but I have to start it today? Did I mention that I ate breakfast this morning as my last meal for the week and it made me incredibly ill for no reason whatsoever? Did I mention that I'm on hospital-level mgs of Zofran in order to stay out of the bathroom? Send help, folks.
Of course my husband would help me with everything if I asked him, and he does so many things without me asking. He takes care of the trash and the dishes and takes care of Jeph in the evenings and I honestly don't know what I would do without him. Probably cry more.
But the point of this post is not to tell you that I've got an amazing husband. It is to tell you that I am feeling overwhelmed and tired and crabby and sick and that this is normal considering what my body is going through right now and that it is okay to feel these things and to let these feelings run their course so you can get past them and get back to living life. Which I will do. This post is at the height of feeling overwhelmed. Perhaps later today or tomorrow, you'll all get a post about how life doesn't suck as much as I thought it did in this particular moment. We will see.
Master To-Do List That You Are Not Expected To Read But I Wrote Out Because I Needed To Vent Somewhere:
1. Backyard poop pick-up
2. Dust Living Room
3. Dust Master Bedroom
4. Clean both bathrooms
5. Laundry
6. Dishes
7. Trash
8. Pick up all trash the dogs have scattered all over the house
9. Throw away the old flowers on the dining table
10. Get Jeph humping Riley's head on camera because it is hilarious and he does it when she takes his toys
11. Write a blog post that doesn't suck
12. Clean Kitchen counters
13. Clean Dining Room table
14. Vacuum and Baking Soda Master Bedroom
15. Re-learn rules of capitalization because this post is a mess as far as that is concerned
16. Put all the weird stuff that found its way into the Living Room away
17. Swiffer (the wet steamer one) the hardwood floors
18. Give Jeph a bath because he smells like pee again
19. Clean Jeph's kennel because that's probably where that awful smell is originating from
20. Put the ten loads of clean laundry that are hiding in the first side room away
21. Clean both side rooms so they are useable and we have company coming in a few weeks and also maybe we can shove the dogs in one of the rooms occasionally to play
22. Vacuum both side rooms
23. Take all the papers that haven't been filed and file them already for goodness' sake
24. Re-organize the side room closets because they are gross right now
25. Continue to teach Jeph "Down" and "Lay Down" this week as well as reinforcing "Sit," "Leave It," and "Quiet."
26. Cry over how long this list is and how you're literally only going to be able to do maybe two things off of this list.
I might perhaps be able to dust some today. In the living room. So that is one out of like seven hundred things I need to do. Did I mention that I have a Colonoscopy/Endoscopy on Friday? Did I mention that most people have to go on the liquid diet for one day but I have to start it today? Did I mention that I ate breakfast this morning as my last meal for the week and it made me incredibly ill for no reason whatsoever? Did I mention that I'm on hospital-level mgs of Zofran in order to stay out of the bathroom? Send help, folks.
Of course my husband would help me with everything if I asked him, and he does so many things without me asking. He takes care of the trash and the dishes and takes care of Jeph in the evenings and I honestly don't know what I would do without him. Probably cry more.
But the point of this post is not to tell you that I've got an amazing husband. It is to tell you that I am feeling overwhelmed and tired and crabby and sick and that this is normal considering what my body is going through right now and that it is okay to feel these things and to let these feelings run their course so you can get past them and get back to living life. Which I will do. This post is at the height of feeling overwhelmed. Perhaps later today or tomorrow, you'll all get a post about how life doesn't suck as much as I thought it did in this particular moment. We will see.
Master To-Do List That You Are Not Expected To Read But I Wrote Out Because I Needed To Vent Somewhere:
1. Backyard poop pick-up
2. Dust Living Room
3. Dust Master Bedroom
4. Clean both bathrooms
5. Laundry
6. Dishes
7. Trash
8. Pick up all trash the dogs have scattered all over the house
9. Throw away the old flowers on the dining table
10. Get Jeph humping Riley's head on camera because it is hilarious and he does it when she takes his toys
11. Write a blog post that doesn't suck
12. Clean Kitchen counters
13. Clean Dining Room table
14. Vacuum and Baking Soda Master Bedroom
15. Re-learn rules of capitalization because this post is a mess as far as that is concerned
16. Put all the weird stuff that found its way into the Living Room away
17. Swiffer (the wet steamer one) the hardwood floors
18. Give Jeph a bath because he smells like pee again
19. Clean Jeph's kennel because that's probably where that awful smell is originating from
20. Put the ten loads of clean laundry that are hiding in the first side room away
21. Clean both side rooms so they are useable and we have company coming in a few weeks and also maybe we can shove the dogs in one of the rooms occasionally to play
22. Vacuum both side rooms
23. Take all the papers that haven't been filed and file them already for goodness' sake
24. Re-organize the side room closets because they are gross right now
25. Continue to teach Jeph "Down" and "Lay Down" this week as well as reinforcing "Sit," "Leave It," and "Quiet."
26. Cry over how long this list is and how you're literally only going to be able to do maybe two things off of this list.
Wednesday, February 15, 2017
What Even Was This Week So Far?
Sorry for the delay in posting new things, but I've been incredibly busy. Of course if you're following my Instagram, you have an idea of some of the things that I've dealt with the past few days.
On February 13, I woke up to the doorbell ringing and my dogs losing their furry minds. When I opened the door, there was a florist with an arrangement of a dozen roses and baby's breath! I was so shocked! The florist didn't want to just leave the flowers outside because there was what qualifies as a Winter storm in New Mexico going on, so he just kept ringing the doorbell until I got to the door. And as you all know, EDS means I move extremely slowly. My poor dogs. But anyways, the flowers were from my husband and they were gorgeous! They remain gorgeous, sitting proudly on the middle of our dining table. I really don't like sharing romantic things my husband does with the public as they happen, as I feel those things are between us and meant to remain private. So I'm sorry, but there was no Instagram post of the flowers. I do enjoy everyone else's posts about the things they do with their significant others (it's one of my favorite things), but personally I don't feel comfortable posting those types of things until after the fact. When I went to put the flowers on the table on Tuesday, I realized just how incredibly dirty my house was. I couldn't have those flowers in a dirty house. No, sirree.
Fun fact about me: I often have manic episodes that result in crazy amounts of things getting done. They usually last a few hours. This particular one came on suddenly and lasted for five hours. Riley recognizes the look in my eye and will hide to avoid getting a bath. Jeph's soft and shiny coat and freshly-trimmed nails tell the tale (tail haha...I'll see myself out) of how he did not heed his sister's advice and failed to hide in time. Poor little guy hates baths. I have done every trick in the book, but to no avail. On Tuesday, I drained the tub and got in with him. He hid between my legs and was okay with getting the soap rinsed off as long as he didn't get dragged from his hiding place. I mentioned before that he likes showers, but he is simply too big now for me to hold him and clean him and not drop him, especially if he wiggles.
The house enjoyed a deep clean. The living room, garage, kitchen, dining room, laundry room, and bedroom were all taken care of. I had to shower three separate times, as I am allergic to all dust and my manic cleaning kicked up quite a lot of it. By the time my husband came home from work, I was exhausted on the couch, hardly able to move.
I was vaguely aware that a year prior, my husband had got down on one knee and asked me to be his. But I assumed we would just be happy about it and save our celebrations for Valentine's Day. I assumed wrong.
My husband told me that we had dinner reservations for 7:30 and that the flowers were indeed meant for February 13, not 14. I was completely flabbergasted and excited, but so very tired. Husband let me take a nap to gain a few more "spoons" (the way the chronic illness community refers to energy*). I had a beautiful time dressing up and doing my hair and makeup extra fancy. Husband kept the destination a secret until we were there. It was this gorgeous restaurant, in our city's preserved antique section of town. It was candle-lit, the food was open-fire-cooked, and the waiters were all obviously professionals who were proud to make this their career. As they should be. What a meal! Steak, crab legs, fresh salads, soups, bread, mousse, and more! It was honestly magical. As was our server's impressive beard. I could go on and on about the merits of this hidden restaurant jewel, but I think I'll keep the rest of this particular memory between my husband and I.
Then came Valentine's Day. Oh, what a day. It began with getting up disgustingly early to drive my husband to work so that I could have the car for the day. What I thought was going to be only a fifteen minute drive to a new Internal Medicine Specialist turned into a forty-five minute evil hell ride, as I had the address wrong when I had looked it up the day before. I'm not even supposed to drive more than ten minutes at a time, as my head and neck end up in an extreme amount of pain. And here we were, having gone forty-five minutes one way. Riley was carsick by the time I finally pulled into what appeared to be a dilapidated old hospital.
Again, if you know me you know that one of my Traumas that fuels my PTSD stems from a terrible hospital/surgery experience. Walking into a converted hospital was not a good idea, but with Riley gently tugging me along, I opened the door and headed in.
I'm sure I've been in a more confusing lobby, but I don't remember it. I had no idea what to do, and there were no signs to tell me. Finally, I found a box of stickers where I was to fill out my personal info. Think "Hello My Name Is" stickers with a few more lines and a place to put your doctor's name. I filled out a sticker, then just stared around the lobby until I caught a passing nurse and begged for instructions. It turns out "everyone knows" that you put this sticker with your personal info in this unmarked box and then just sort of hope that the admitting staff looks in the box and calls you over and also hope that this sticker gets shredded or something. Fun. Eventually, I was called over to a desk where I was "admitted," which was confusing to me and upsetting to my Trauma Brain. I was here to see a specialist, not to get admitted into a system. I ended up getting a yellow band, as I was at risk of falling at any time. The one thing that was good about this whole admitting fiasco was that they had a separate form that asked for my preferences. What name would I liked to be called, what gender I identified as, my birth gender and name, my preferred language, my sexuality, my religion, and other questions. The admitting woman then immediately switched to referring to me as "Abby" instead of "Abigail." And didn't slip up once. And neither did the nurse who called me to the back. It was a bright spot, as I felt that they would for sure honor and respect the requests of individuals whose names and genders were different than they were at birth.
Then it was time for the actual appointment. The nurse who took me to the back obviously had not been briefed on any of my conditions, as she asked me to put my belongings on a shelf high above my head while she took my height and weight. There was no secondary option, so I put my things on the floor. She was very confused, and seemed thrown off her game. Apparently everyone she knows can lift heavy things above their heads. I mean, you'd think the giant Black Lab with "Service Dog" and "Mobility Assistance" and "Medical Alert" stickers all over her vest would be a clue. And I was right about it being an old hospital. I was led right past a place that looked exactly like the nurses' station in the cardiac unit in a hospital I had been in. I kept myself firmly focused on Riley, having asked her to "follow" the nurse to our room. I had been told to bring my medical records and had a huge stack of just the last few years (my whole medical record would fill up several cabinets). But the nurse did not want the medical records. The admitting woman had not wanted them. I had no idea why I brought them. The nurse mentioned that "Ms. Guttman" would maybe want to flip through it. I was confused as to why the nurse wasn't saying "doctor," but then just brushed it off thinking that this was a workplace that encouraged familiarity. The nurse finally confessed to me that she was terrified of dogs, and I immediately apologized and asked Riley, who was guarding the front of me, to go and sit on my left side. The nurse took my pulse incorrectly, spelled all my allergies incorrectly, and didn't want to write down any of my medications in my file. I chalked this up to being terrified of my dog. I never blame anyone who is afraid of Riley, because if someone came in to my place of business with a tarantula, you better believe I wouldn't be able to do my job!
Then came the specialist I had been waiting two months to see. I was almost out of medications, and was eager to speak to a specialist about managing my meds and getting re-fills/re-prescriptions. I've also been sick to my stomach and bleeding rectally for two weeks now, and was wanting to ask what the hell was going on with that (TMI, I know. But this is what you read my blog for, so...).
The door opens. This small woman walks in. She asks me if I am Abby. I say yes. I say, "Hello, Dr. Guttman." She says, "Oh, I'm not a doctor. I'm a registered nurse practitioner, so I hope that's okay." I was stunned. She sauntered over to the doctor's chair and began to glance over my file. I managed to say that my Special Needs Coordinator had made this appointment for me with the impression that she was an Internal Medicine Specialist and that it even said so on my referral letter from my insurance company. She nonchalantly responded with, "Oh, I misrepresented myself. But I've been a nurse for so many years I'm practically qualified to be an Internal Medicine Specialist." I wanted to run away, but my life-saving medications were running low, so I sat through an agonizing, frustrating, terrible appointment in order to get prescriptions for my meds. It included, but was not limited to: the stethoscope getting stuck in my clothes three separate times, her not being able to hear my heart and lungs because her "hearing is failing," her demanding to know why I'm on so many medications, her confessing that she had no idea what I'm diagnosed with, her looking at labs from four years ago and saying that she's sure nothing has changed since then, her telling me to go to a different health system because she used to work for them before they fired her for wanting to retire (suuuure), and her taking a full half an hour to type up four prescriptions.
When the appointment was over, I gave Riley an emergency command. Her normal "let's leave" command is "Lead Me Out." Don't judge me, but her emergency command is "Let's Get The Fuck Out Of Here." She also responds to "Let's GTFO." She pulled me all the way through the run-down old hospital, through several doors, and out to the car and didn't let me stop or cry until I was firmly inside the car.
I sat in the car shaking and crying. When I finally calmed down, I realized I was going to have a forty-five minute drive home. Cue the crying all over again. Riley licked me from the backseat and grounded me until I could get a hold of myself.
My poor husband got a torrent of furious texts. He took time out of his work day to respond, as he was also horribly angry at what had happened. I decided I was going to get McDonald's for lunch. I had planned to stop by the BX (like an Air Force version of Target) when I got back to the base and pick up a surprise V-Day gift for my husband, but after that particular "adventure," I decided to grab some Valentine's Day chocolates as well.
After picking up cheeseburgers, fries, and a Shamrock Shake (my guilty pleasure that I wait for all year), we sat in the BX Mini-Mall parking lot, took deep breaths, ate, and fully put the horrible morning behind us.
Riley and I dropped my prescriptions off at the base pharmacy and headed to the BX. We took a slight detour on our way to the chocolates because Riley was alerting me to the danger of a mannequin that she thought was standing suspiciously still for just too long to be harmless. We picked up a cologne Husband has wanted for months, a sweet Valentine's Day card, and many chocolates. Usually I wait until February 15-17 to get the chocolate on sale, but this was an emergency situation.
My Care Coordinator was incensed when I told her what had happened. She told me that they had told her over the phone that this woman was an Internal Medicine Doctor, and that there was no excuse for them lying like that. She is now working on finding me an actual Internal Medicine Specialist.
Jeph was more than happy to see us when we got home, but Riley was so tired that the little guy ended up playing by himself while she slept.
When Husband got home from work, we shared leftovers from our romantic dinner. I then took an aromatherapy bath for pain, as my body was over-exhausted by the events of the day. After the bath, which was absolutely amazing, I was re-energized and we went to a Mexican sports bar for dinner. We enjoyed drinks, wings, tacos, nachos, and yelling at a UFC fight, a basketball game, and several horse races. It was exactly the kind of thing that was needed after the day we had both had. We left Riley at home because the poor girl was exhausted and would have hated the loud environment of the sports bar. I do need her 24/7, but when Husband and I go out we occasionally leave her at home to rest, as he is very good at recognizing my symptoms and signs and sometimes parents just need Date Night.
This morning, my neck is horribly stiff. I can't look to the right. Jeph is enjoying this, and continually waits until my back is turned before jumping up on the trash can. I will take a bath later, enjoying some amazingly potent oils that I got from this amazing little herbal and natural medicine shop Husband and I discovered in downtown Albuquerque. I am also wearing an Aromatherapy necklace I got from that shop, and it has been invaluable.
I'm not sure when my next blog post will be. Today, I am resting. Tomorrow morning I have a two hour Psychiatry evaluation and intake appointment and tomorrow afternoon I have a one hour Psychology evaluation and initial appointment. Tomorrow will be so tiring. Friday I see my current Primary Care Manager (aka regular doctor) and will ask about the infection in my belly button, the bleeding from my butt, and my extra nausea. Saturday, Riley has a grooming appointment at a new groomer's. We have a few days of rest and then it's off to Texas for Husband's brother's graduation with the In-Laws. Wish me luck and spoons, friends. And follow me on Twitter, Facebook, and Instagram for pictures and stories in-between blog posts.
*https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
If you're wondering why the heck spoons refer to energy...
On February 13, I woke up to the doorbell ringing and my dogs losing their furry minds. When I opened the door, there was a florist with an arrangement of a dozen roses and baby's breath! I was so shocked! The florist didn't want to just leave the flowers outside because there was what qualifies as a Winter storm in New Mexico going on, so he just kept ringing the doorbell until I got to the door. And as you all know, EDS means I move extremely slowly. My poor dogs. But anyways, the flowers were from my husband and they were gorgeous! They remain gorgeous, sitting proudly on the middle of our dining table. I really don't like sharing romantic things my husband does with the public as they happen, as I feel those things are between us and meant to remain private. So I'm sorry, but there was no Instagram post of the flowers. I do enjoy everyone else's posts about the things they do with their significant others (it's one of my favorite things), but personally I don't feel comfortable posting those types of things until after the fact. When I went to put the flowers on the table on Tuesday, I realized just how incredibly dirty my house was. I couldn't have those flowers in a dirty house. No, sirree.
Fun fact about me: I often have manic episodes that result in crazy amounts of things getting done. They usually last a few hours. This particular one came on suddenly and lasted for five hours. Riley recognizes the look in my eye and will hide to avoid getting a bath. Jeph's soft and shiny coat and freshly-trimmed nails tell the tale (tail haha...I'll see myself out) of how he did not heed his sister's advice and failed to hide in time. Poor little guy hates baths. I have done every trick in the book, but to no avail. On Tuesday, I drained the tub and got in with him. He hid between my legs and was okay with getting the soap rinsed off as long as he didn't get dragged from his hiding place. I mentioned before that he likes showers, but he is simply too big now for me to hold him and clean him and not drop him, especially if he wiggles.
The house enjoyed a deep clean. The living room, garage, kitchen, dining room, laundry room, and bedroom were all taken care of. I had to shower three separate times, as I am allergic to all dust and my manic cleaning kicked up quite a lot of it. By the time my husband came home from work, I was exhausted on the couch, hardly able to move.
I was vaguely aware that a year prior, my husband had got down on one knee and asked me to be his. But I assumed we would just be happy about it and save our celebrations for Valentine's Day. I assumed wrong.
My husband told me that we had dinner reservations for 7:30 and that the flowers were indeed meant for February 13, not 14. I was completely flabbergasted and excited, but so very tired. Husband let me take a nap to gain a few more "spoons" (the way the chronic illness community refers to energy*). I had a beautiful time dressing up and doing my hair and makeup extra fancy. Husband kept the destination a secret until we were there. It was this gorgeous restaurant, in our city's preserved antique section of town. It was candle-lit, the food was open-fire-cooked, and the waiters were all obviously professionals who were proud to make this their career. As they should be. What a meal! Steak, crab legs, fresh salads, soups, bread, mousse, and more! It was honestly magical. As was our server's impressive beard. I could go on and on about the merits of this hidden restaurant jewel, but I think I'll keep the rest of this particular memory between my husband and I.
Then came Valentine's Day. Oh, what a day. It began with getting up disgustingly early to drive my husband to work so that I could have the car for the day. What I thought was going to be only a fifteen minute drive to a new Internal Medicine Specialist turned into a forty-five minute evil hell ride, as I had the address wrong when I had looked it up the day before. I'm not even supposed to drive more than ten minutes at a time, as my head and neck end up in an extreme amount of pain. And here we were, having gone forty-five minutes one way. Riley was carsick by the time I finally pulled into what appeared to be a dilapidated old hospital.
Again, if you know me you know that one of my Traumas that fuels my PTSD stems from a terrible hospital/surgery experience. Walking into a converted hospital was not a good idea, but with Riley gently tugging me along, I opened the door and headed in.
I'm sure I've been in a more confusing lobby, but I don't remember it. I had no idea what to do, and there were no signs to tell me. Finally, I found a box of stickers where I was to fill out my personal info. Think "Hello My Name Is" stickers with a few more lines and a place to put your doctor's name. I filled out a sticker, then just stared around the lobby until I caught a passing nurse and begged for instructions. It turns out "everyone knows" that you put this sticker with your personal info in this unmarked box and then just sort of hope that the admitting staff looks in the box and calls you over and also hope that this sticker gets shredded or something. Fun. Eventually, I was called over to a desk where I was "admitted," which was confusing to me and upsetting to my Trauma Brain. I was here to see a specialist, not to get admitted into a system. I ended up getting a yellow band, as I was at risk of falling at any time. The one thing that was good about this whole admitting fiasco was that they had a separate form that asked for my preferences. What name would I liked to be called, what gender I identified as, my birth gender and name, my preferred language, my sexuality, my religion, and other questions. The admitting woman then immediately switched to referring to me as "Abby" instead of "Abigail." And didn't slip up once. And neither did the nurse who called me to the back. It was a bright spot, as I felt that they would for sure honor and respect the requests of individuals whose names and genders were different than they were at birth.
Then it was time for the actual appointment. The nurse who took me to the back obviously had not been briefed on any of my conditions, as she asked me to put my belongings on a shelf high above my head while she took my height and weight. There was no secondary option, so I put my things on the floor. She was very confused, and seemed thrown off her game. Apparently everyone she knows can lift heavy things above their heads. I mean, you'd think the giant Black Lab with "Service Dog" and "Mobility Assistance" and "Medical Alert" stickers all over her vest would be a clue. And I was right about it being an old hospital. I was led right past a place that looked exactly like the nurses' station in the cardiac unit in a hospital I had been in. I kept myself firmly focused on Riley, having asked her to "follow" the nurse to our room. I had been told to bring my medical records and had a huge stack of just the last few years (my whole medical record would fill up several cabinets). But the nurse did not want the medical records. The admitting woman had not wanted them. I had no idea why I brought them. The nurse mentioned that "Ms. Guttman" would maybe want to flip through it. I was confused as to why the nurse wasn't saying "doctor," but then just brushed it off thinking that this was a workplace that encouraged familiarity. The nurse finally confessed to me that she was terrified of dogs, and I immediately apologized and asked Riley, who was guarding the front of me, to go and sit on my left side. The nurse took my pulse incorrectly, spelled all my allergies incorrectly, and didn't want to write down any of my medications in my file. I chalked this up to being terrified of my dog. I never blame anyone who is afraid of Riley, because if someone came in to my place of business with a tarantula, you better believe I wouldn't be able to do my job!
Then came the specialist I had been waiting two months to see. I was almost out of medications, and was eager to speak to a specialist about managing my meds and getting re-fills/re-prescriptions. I've also been sick to my stomach and bleeding rectally for two weeks now, and was wanting to ask what the hell was going on with that (TMI, I know. But this is what you read my blog for, so...).
The door opens. This small woman walks in. She asks me if I am Abby. I say yes. I say, "Hello, Dr. Guttman." She says, "Oh, I'm not a doctor. I'm a registered nurse practitioner, so I hope that's okay." I was stunned. She sauntered over to the doctor's chair and began to glance over my file. I managed to say that my Special Needs Coordinator had made this appointment for me with the impression that she was an Internal Medicine Specialist and that it even said so on my referral letter from my insurance company. She nonchalantly responded with, "Oh, I misrepresented myself. But I've been a nurse for so many years I'm practically qualified to be an Internal Medicine Specialist." I wanted to run away, but my life-saving medications were running low, so I sat through an agonizing, frustrating, terrible appointment in order to get prescriptions for my meds. It included, but was not limited to: the stethoscope getting stuck in my clothes three separate times, her not being able to hear my heart and lungs because her "hearing is failing," her demanding to know why I'm on so many medications, her confessing that she had no idea what I'm diagnosed with, her looking at labs from four years ago and saying that she's sure nothing has changed since then, her telling me to go to a different health system because she used to work for them before they fired her for wanting to retire (suuuure), and her taking a full half an hour to type up four prescriptions.
When the appointment was over, I gave Riley an emergency command. Her normal "let's leave" command is "Lead Me Out." Don't judge me, but her emergency command is "Let's Get The Fuck Out Of Here." She also responds to "Let's GTFO." She pulled me all the way through the run-down old hospital, through several doors, and out to the car and didn't let me stop or cry until I was firmly inside the car.
I sat in the car shaking and crying. When I finally calmed down, I realized I was going to have a forty-five minute drive home. Cue the crying all over again. Riley licked me from the backseat and grounded me until I could get a hold of myself.
My poor husband got a torrent of furious texts. He took time out of his work day to respond, as he was also horribly angry at what had happened. I decided I was going to get McDonald's for lunch. I had planned to stop by the BX (like an Air Force version of Target) when I got back to the base and pick up a surprise V-Day gift for my husband, but after that particular "adventure," I decided to grab some Valentine's Day chocolates as well.
After picking up cheeseburgers, fries, and a Shamrock Shake (my guilty pleasure that I wait for all year), we sat in the BX Mini-Mall parking lot, took deep breaths, ate, and fully put the horrible morning behind us.
Riley and I dropped my prescriptions off at the base pharmacy and headed to the BX. We took a slight detour on our way to the chocolates because Riley was alerting me to the danger of a mannequin that she thought was standing suspiciously still for just too long to be harmless. We picked up a cologne Husband has wanted for months, a sweet Valentine's Day card, and many chocolates. Usually I wait until February 15-17 to get the chocolate on sale, but this was an emergency situation.
My Care Coordinator was incensed when I told her what had happened. She told me that they had told her over the phone that this woman was an Internal Medicine Doctor, and that there was no excuse for them lying like that. She is now working on finding me an actual Internal Medicine Specialist.
Jeph was more than happy to see us when we got home, but Riley was so tired that the little guy ended up playing by himself while she slept.
When Husband got home from work, we shared leftovers from our romantic dinner. I then took an aromatherapy bath for pain, as my body was over-exhausted by the events of the day. After the bath, which was absolutely amazing, I was re-energized and we went to a Mexican sports bar for dinner. We enjoyed drinks, wings, tacos, nachos, and yelling at a UFC fight, a basketball game, and several horse races. It was exactly the kind of thing that was needed after the day we had both had. We left Riley at home because the poor girl was exhausted and would have hated the loud environment of the sports bar. I do need her 24/7, but when Husband and I go out we occasionally leave her at home to rest, as he is very good at recognizing my symptoms and signs and sometimes parents just need Date Night.
This morning, my neck is horribly stiff. I can't look to the right. Jeph is enjoying this, and continually waits until my back is turned before jumping up on the trash can. I will take a bath later, enjoying some amazingly potent oils that I got from this amazing little herbal and natural medicine shop Husband and I discovered in downtown Albuquerque. I am also wearing an Aromatherapy necklace I got from that shop, and it has been invaluable.
I'm not sure when my next blog post will be. Today, I am resting. Tomorrow morning I have a two hour Psychiatry evaluation and intake appointment and tomorrow afternoon I have a one hour Psychology evaluation and initial appointment. Tomorrow will be so tiring. Friday I see my current Primary Care Manager (aka regular doctor) and will ask about the infection in my belly button, the bleeding from my butt, and my extra nausea. Saturday, Riley has a grooming appointment at a new groomer's. We have a few days of rest and then it's off to Texas for Husband's brother's graduation with the In-Laws. Wish me luck and spoons, friends. And follow me on Twitter, Facebook, and Instagram for pictures and stories in-between blog posts.
*https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
If you're wondering why the heck spoons refer to energy...
Wednesday, February 8, 2017
Take Your Feel-Good Illness Movies And Shove Them
Long-term illness is not like you see in the movies. It is not the quiet, pretty, good little girl who it turns out is secretly suffering from a life-threatening illness. It is not a reclusive billionaire who is really hot if he just shaved and who decides not to live because what is the point of living if you are in a wheelchair. It is not a gorgeous, pale woman with subtle makeup lying tragically in a bed, staring out a window and living only so someone can be her savior. It is not the optimistic, sweet yet sometimes sassy little girl who helps you discover the how to live again before she tragically passes away from cancer without showing any outward signs at all ever. It is not the invalid who just needs a little fresh air to suddenly be completely healed. It is not two kids trashing a town because that's how one learns to "live" and they're going to die so they might as well "live" as much as possible.
When I was younger, I used to cry that I was not "pretty" sick. I wasn't a beautifully thin child in a warmly lit room, surrounded by toys and cards and balloons and other gifts. I was constantly yo-yo-ing up and down fifty pounds, as medication side effects played with my body shape. I swelled up to three clothing sizes larger in the afternoon, then woke up back down those three sizes. I was eleven the first time a stranger asked me when I was due. I wasn't tragically weak and sitting outside in a wheelchair, taking in the sunlight that would magically heal me. I was told time and time again by school counselors that I was sick only for attention. I was horribly harassed and traumatized every day by my peers at school, and while that for sure played a part in my mental health and mental health does affect one's body physically, it had absolutely nothing to do with my underlying actual physical issues. I was compared to the Secret Garden boy and the Heidi girl over and over again. Maybe I should try yoga, go out in the sun more, try a sport, etc. And then there was the "why aren't you dead yet?" question that I got time and time again from peers, teachers, strangers, and well-meaning family friends. I began to wonder when my illnesses would finally kill me. Everyone else seemed to think that being sick for a long time inevitably led to death or it wasn't real. And everyone couldn't be wrong, right? When my stomach pain got so bad it led to dizziness, sweating, vomiting, and fainting, I hid how bad it was for two years. Two whole years I let my family believe that I was just doing regular pre-teen girl things like makeup or dancing or whatever in the bathroom when really I was having spasms in whatever dark corner I could find because either I would die tragically soon or I was really making it up and didn't realize it and it would go away soon. Watching movies that portrayed illness just made me feel so incredibly inadequate. Something was super wrong with me that I wasn't like what I saw.
Long-term illness is greasy hair, smelly bodies, dried vomit on toilet seats. It is realizing in the late afternoon that you haven't brushed your teeth all day so many days in a row that your teeth ache. It is doing your hair and being too exhausted to do makeup or get dressed. It is looking around at the house and realizing that while you've done the dishes, every other room in the house remains a disaster and you simply cannot get up to clean them. It is applauding yourself every time you manage to get from the bed to the couch. It is realizing you've already watched every episode of every show you want to see on Netflix and Hulu and resorting to watching things like Divorce Court because at least you haven't seen every episode twelve times. It is suddenly realizing that you've got an infection starting near one of your surgery scars and being terrified that you'll end up in the hospital with a blood infection and then calling the doctor's office and getting an appointment for a week from now and being terrified that this appointment isn't soon enough. It's managing to feed the dogs, let them out, and that's about it. It's sitting on the couch extremely hungry, but being too exhausted to get up and make yourself something to eat. It's getting dehydrated because your legs decide to not let you walk to the faucet and you've run out of water in the pitcher by your bed. It's keeping a notebook with you with all the important information you need to remember because you can't remember any of it by yourself. It's being dependent on other people for your care. It's being dependent on a dog for your care, sometimes. It's holding a degree from a top liberal arts college and not being able to use it because you can't work for one hour a week, let alone forty without ending up in the hospital for a week. It's having to have so many reminders and systems in place for medications and still forgetting to take the right pills at the right time. It's having your service dog annoy you until you realize, "Oh! It's pill time!" It is people telling you that you are so brave for continuing to live. It is people telling your significant other that they are so brave and good and pure for staying with a horrible medical mess monster like you. It is strangers offering you advice. It is strangers glaring at you for parking in handicapped spaces because you're too young to be ill. It's fighting hard to be heard by doctors. It is crying with relief when you find medical professionals who help you. It is crying in despair because you've woken up in pain yet again just like you have for the last twenty or thirty or forty years. It is seeing spots when you bend down to pick up a towel you've dropped. It is falling down stairs, falling in bathrooms, falling in kitchens, falling at friends' houses, falling in grocery stores, falling in movie theatres, throwing up in every single public bathroom in your surrounding area, passing out at an event that was supposed to be about a friend or family member but now is about you because you've passed out. It is waking up on the floor of the bedroom unaware of how you got there or when or if you've hit your head or broken bones. It is knowing the EMS personnel by name (Oh, hey, Len. How was your kid's dance concert?). It is comparing and contrasting hospitals in the area in casual conversations. It is trying desperately to not bring up your health in regular conversations. It is a constant struggle. It is ugly, it is brutal, it is exhausting, and it is gross. Depending on what you've been diagnosed with, you might be on the highway to death or you might be trapped in a debilitated body for years upon years.
Yes, it makes you stronger, but it's because you have no choice. You have no choice but to fight every single day. You are literally fighting for every breath you take and every tiny task you complete is a reason for rejoicing. I would pay so much money to go see a movie that portrayed long-term chronic illness or terminal illness like that.
When I was younger, I used to cry that I was not "pretty" sick. I wasn't a beautifully thin child in a warmly lit room, surrounded by toys and cards and balloons and other gifts. I was constantly yo-yo-ing up and down fifty pounds, as medication side effects played with my body shape. I swelled up to three clothing sizes larger in the afternoon, then woke up back down those three sizes. I was eleven the first time a stranger asked me when I was due. I wasn't tragically weak and sitting outside in a wheelchair, taking in the sunlight that would magically heal me. I was told time and time again by school counselors that I was sick only for attention. I was horribly harassed and traumatized every day by my peers at school, and while that for sure played a part in my mental health and mental health does affect one's body physically, it had absolutely nothing to do with my underlying actual physical issues. I was compared to the Secret Garden boy and the Heidi girl over and over again. Maybe I should try yoga, go out in the sun more, try a sport, etc. And then there was the "why aren't you dead yet?" question that I got time and time again from peers, teachers, strangers, and well-meaning family friends. I began to wonder when my illnesses would finally kill me. Everyone else seemed to think that being sick for a long time inevitably led to death or it wasn't real. And everyone couldn't be wrong, right? When my stomach pain got so bad it led to dizziness, sweating, vomiting, and fainting, I hid how bad it was for two years. Two whole years I let my family believe that I was just doing regular pre-teen girl things like makeup or dancing or whatever in the bathroom when really I was having spasms in whatever dark corner I could find because either I would die tragically soon or I was really making it up and didn't realize it and it would go away soon. Watching movies that portrayed illness just made me feel so incredibly inadequate. Something was super wrong with me that I wasn't like what I saw.
Long-term illness is greasy hair, smelly bodies, dried vomit on toilet seats. It is realizing in the late afternoon that you haven't brushed your teeth all day so many days in a row that your teeth ache. It is doing your hair and being too exhausted to do makeup or get dressed. It is looking around at the house and realizing that while you've done the dishes, every other room in the house remains a disaster and you simply cannot get up to clean them. It is applauding yourself every time you manage to get from the bed to the couch. It is realizing you've already watched every episode of every show you want to see on Netflix and Hulu and resorting to watching things like Divorce Court because at least you haven't seen every episode twelve times. It is suddenly realizing that you've got an infection starting near one of your surgery scars and being terrified that you'll end up in the hospital with a blood infection and then calling the doctor's office and getting an appointment for a week from now and being terrified that this appointment isn't soon enough. It's managing to feed the dogs, let them out, and that's about it. It's sitting on the couch extremely hungry, but being too exhausted to get up and make yourself something to eat. It's getting dehydrated because your legs decide to not let you walk to the faucet and you've run out of water in the pitcher by your bed. It's keeping a notebook with you with all the important information you need to remember because you can't remember any of it by yourself. It's being dependent on other people for your care. It's being dependent on a dog for your care, sometimes. It's holding a degree from a top liberal arts college and not being able to use it because you can't work for one hour a week, let alone forty without ending up in the hospital for a week. It's having to have so many reminders and systems in place for medications and still forgetting to take the right pills at the right time. It's having your service dog annoy you until you realize, "Oh! It's pill time!" It is people telling you that you are so brave for continuing to live. It is people telling your significant other that they are so brave and good and pure for staying with a horrible medical mess monster like you. It is strangers offering you advice. It is strangers glaring at you for parking in handicapped spaces because you're too young to be ill. It's fighting hard to be heard by doctors. It is crying with relief when you find medical professionals who help you. It is crying in despair because you've woken up in pain yet again just like you have for the last twenty or thirty or forty years. It is seeing spots when you bend down to pick up a towel you've dropped. It is falling down stairs, falling in bathrooms, falling in kitchens, falling at friends' houses, falling in grocery stores, falling in movie theatres, throwing up in every single public bathroom in your surrounding area, passing out at an event that was supposed to be about a friend or family member but now is about you because you've passed out. It is waking up on the floor of the bedroom unaware of how you got there or when or if you've hit your head or broken bones. It is knowing the EMS personnel by name (Oh, hey, Len. How was your kid's dance concert?). It is comparing and contrasting hospitals in the area in casual conversations. It is trying desperately to not bring up your health in regular conversations. It is a constant struggle. It is ugly, it is brutal, it is exhausting, and it is gross. Depending on what you've been diagnosed with, you might be on the highway to death or you might be trapped in a debilitated body for years upon years.
Yes, it makes you stronger, but it's because you have no choice. You have no choice but to fight every single day. You are literally fighting for every breath you take and every tiny task you complete is a reason for rejoicing. I would pay so much money to go see a movie that portrayed long-term chronic illness or terminal illness like that.
Thursday, February 2, 2017
Learning To Be Okay Part 1
I will be occasionally baring my soul to y'all, as I am working very hard on my mental health recovery. I see a new psychologist soon. I spoke with her at length over the phone. Our goal in working together will be to help me cope with my mental illnesses, not irradicate them completely. Therapy is not a magic pill, and I will have to do hard, dark, terrifying work in my mind and in my life in order to help myself. I'm scared about doing this work, but I am ready for it. A really good way for me personally to work through issues is to write about them. I will title these posts "Learning to Be Okay Part __," so if you don't want to or can't read them, you'll know which ones to skip. Today, a certain issue is running around and around in my brain. In an attempt to start working on it, I write about it here:
When I met my husband, I was working a job that my health could not handle. I was too terrified of being homeless or not being able to afford my treatments to stop, even though my health was steadily declining and I was visiting emergency rooms every other week. When my now husband, then boyfriend, insisted on helping to support me, I had so much guilt that I was physically ill. I was terrified to the point of wild panic that everyone who knew him might think I was taking advantage of him. I was also so incredibly angry at my body. I had graduated with honors from a top liberal arts college, and here I was unable to pay for groceries and medications to keep myself alive.
Fast-forward to now. My husband has a good job. We have a safe place to live. My pantry has the weird powders and supplements that I need for my stomach issues. My medicine drawer has the medications I need to keep myself breathing. I haven't been to the hospital in over three months. And I honestly don't know how to handle this change. I am convinced somewhere deep in my brain that one day I will wake up with nothing and have to fight for food again, working jobs I cannot physically handle and destroying my body in the process.
The positive side of this is that I am always on the lookout for sales and coupons. I can't bring myself to buy anything without researching it thoroughly, so we always end up with good quality items. And my husband has been amazing about this. When he found out that my shoes had holes in them, he took me to buy new ones and encouraged me to throw the old ones away. When he noticed that I had hardly any clothes that fit, he took me to buy some new ones. I insisted on taking advantage of the clearance racks and sales, and he sweetly indulged me in that little eccentricity.
I keep frantically donating and giving to people who don't have enough, as I hate that there are people in the world who go through what I did and I absolutely loathe that there are people who have it worse. I want to give them all a safe place to live and a loving family, but since I can't do that, I donate my clothes that still have wear in them and anything that I can't use goes to charity.
I have this deep fear inside me that I will someday become materialistic out of nowhere. I know it isn't really a thing I should be afraid of, as this isn't in my nature. But I still worry. What if some people still do secretly think that I am taking advantage of my dear husband, as I do not look sick to the un-knowing eye? I know that I worry about these things more than I should, because I sometimes rave about them during panic attacks when I am not in control of what I am saying. My ever-patient husband holds me and comforts me while I cry, and then insists on not letting me wear shoes whose soles are literally falling off. I am grateful for him every single day. He is the best thing that has ever happened to me. I love him.
Now if you'll excuse me, my dogs are barking at the neighbor dogs, and I must thank them for their diligent protection of me. They are very, very good dogs.
Sunday, January 29, 2017
Rock Bottom?
(Because I know many of my readers suffer from things similar to what I am writing about today...TW: Trauma, Medical things, Mental health. Read safely, loves.)
There was no post yesterday because my body decided it was done. I had a full physical breakdown. I slept for fourteen hours and when I finally awakened, it was because my angel of a husband physically shook me awake. He knew I was dehydrated and hungry, even though I could feel nothing but the severe pain. He helped me sit up and forced my reluctant body to take pills and drink water and eat food. He helped me to walk to the couch where he could keep an eye on me. I had a few good hours where I was awake and coherent. Then, suddenly, I collapsed again. Apparently, Husband spent an hour warming me up with blankets and heating pads and tea while massaging my convulsing limbs to get my blood flowing properly. I remember hardly any of it. I am so incredibly grateful for him. He is amazing.
I'm going to be brutally honest here. I know I have a lot of young people who I have taught in past years who look up to me and who will read this and be shocked, as they think of me as upbeat and a positive person. And the number of people who know I have mental illnesses is very low. I'm sorry, guys. I'm human. And I'm scared.
I'm terrified. My mental health is severely slipping. I've begun losing hours of my day as a routine thing now. Instances like suddenly realizing I am at the grocery store with my husband and having no memory of the day prior to that is a normal occurrence. The voice inside my head that tells me to die is getting louder and more insistent. The panic I fight is becoming an overwhelming tidal wave that is rendering me incapable of going a single day without hysterics. The medication that I am on is helping me hold on to my mind by the fingernails. I've begun dissociating very noticeably. And just the other day, I realized that the voices I have been hearing are not going to go away. They've been getting louder. There are three of them, and so far they just say my name or "Hey," but my word, it is terrifying. If I had a dime for every time I have broken down sobbing in front of my husband, saying, "what is happening to me?" or, "you're not real. This is a dream," I could pay for mental health reform in America. And the flashbacks? Let's just say that my service dog Riley is definitely earning her treats. I finally called my EFMP (the program the military has for disabled family members) sponsor and told her I need to see a psychiatrist ASAP to get a proper diagnosis and proper treatment. The asshole who "treated" me before (in 2014) literally sat down with me for three minutes, didn't let me talk, and then laughed at me outright when I told him I was having flashbacks. He told me that doesn't happen and young women like myself are usually prone to anxiety. He then called my therapist in (who was in the same building) and, laughing, told him that I was having flashbacks. The two of them openly giggled together. And I still had to go see that therapist, as he was my only hope at not killing myself. When I told him that I could never trust him after seeing him laugh with my "psychiatrist," he was shocked and told me he didn't realize that would offend me. I should probably pray about that, I was told. He himself did not believe me that I actually was ill until he witnessed a flashback. When I came to, I told him I wanted to die. He suddenly realized I wasn't a "hysterical female" and demanded I be on medication and possibly permanently institutionalized if it got worse. From 0-100 in less than 60 seconds. Impressive. He hadn't ever seen anyone actually go through something like my episodes, and was completely at a loss as to what to do for me. He also was not aware that people could go through more than one trauma in their lifetime. Worst. My only experiences with mental health professionals before that was countless (at least 10) psychologists and therapists who were hired by my insurance company to get me to say that the physical illnesses I had were all psychosomatic (i.e. I was doing it to myself because I was an attention whore. One counselor's words, not mine) so they wouldn't have to pay for any of my medications or treatment. Spoilers: I have three debilitating chronic illnesses that are worse than they would be because I wasn't treated properly for 25 years. Here's hoping that this upcoming experience with mental health professionals is better.
I don't know how much longer I will have my mobility. My next doctor appointment, I'm going to be talking with a physician about getting a wheelchair. I haven't danced in months. I haven't been able to drive a car for any distance by myself for two years now. And yesterday, the pain was unlike any I have ever had (with the exception of the pain from surgeries, because holy shit that hurt). My body is telling me that I am doing too much. And I'm upset and terrified, because all I am doing is sitting on couches or sleeping on beds and yes, I'm cleaning and taking care of a small pup but my goodness, that's nothing compared to what some people do and here I am completely unable to even do the smallest of tasks? It's upsetting.
I get these urges to just do stupid things to my body because who the hell cares, right? What is it going to matter if I drink myself to death or smoke until I have cancer? Or eat until I throw up? Or go walking in a bad neighborhood by myself at 3 AM? Or smack my head into a wall until I see blood? The self-harming voices are getting loud. Thankfully, I haven't done anything yet. I have a service dog who recognizes the spiraling thoughts and comes to jar me out of them. And she's teaching little Jeph to do the same. Human hasn't spoken or moved in a bit? Time to lick her. She's already taught Jeph to climb on my lap and lick my tears while she licks my hand. And my husband refuses to let me get away with saying everything is "fine" when he knows damn well it isn't. If I didn't have them, I would have been dead by now.
So here I am, on a Sunday morning, having not showered in days. I'm completely exhausted mentally, physically, and emotionally. My service dog has "grounded" me at least six times while I was writing this. I know I might lose people. I know I might only have three views. But I have to be honest.
Stay safe until tomorrow, friends. And I will try to do the same.
There was no post yesterday because my body decided it was done. I had a full physical breakdown. I slept for fourteen hours and when I finally awakened, it was because my angel of a husband physically shook me awake. He knew I was dehydrated and hungry, even though I could feel nothing but the severe pain. He helped me sit up and forced my reluctant body to take pills and drink water and eat food. He helped me to walk to the couch where he could keep an eye on me. I had a few good hours where I was awake and coherent. Then, suddenly, I collapsed again. Apparently, Husband spent an hour warming me up with blankets and heating pads and tea while massaging my convulsing limbs to get my blood flowing properly. I remember hardly any of it. I am so incredibly grateful for him. He is amazing.
I'm going to be brutally honest here. I know I have a lot of young people who I have taught in past years who look up to me and who will read this and be shocked, as they think of me as upbeat and a positive person. And the number of people who know I have mental illnesses is very low. I'm sorry, guys. I'm human. And I'm scared.
I'm terrified. My mental health is severely slipping. I've begun losing hours of my day as a routine thing now. Instances like suddenly realizing I am at the grocery store with my husband and having no memory of the day prior to that is a normal occurrence. The voice inside my head that tells me to die is getting louder and more insistent. The panic I fight is becoming an overwhelming tidal wave that is rendering me incapable of going a single day without hysterics. The medication that I am on is helping me hold on to my mind by the fingernails. I've begun dissociating very noticeably. And just the other day, I realized that the voices I have been hearing are not going to go away. They've been getting louder. There are three of them, and so far they just say my name or "Hey," but my word, it is terrifying. If I had a dime for every time I have broken down sobbing in front of my husband, saying, "what is happening to me?" or, "you're not real. This is a dream," I could pay for mental health reform in America. And the flashbacks? Let's just say that my service dog Riley is definitely earning her treats. I finally called my EFMP (the program the military has for disabled family members) sponsor and told her I need to see a psychiatrist ASAP to get a proper diagnosis and proper treatment. The asshole who "treated" me before (in 2014) literally sat down with me for three minutes, didn't let me talk, and then laughed at me outright when I told him I was having flashbacks. He told me that doesn't happen and young women like myself are usually prone to anxiety. He then called my therapist in (who was in the same building) and, laughing, told him that I was having flashbacks. The two of them openly giggled together. And I still had to go see that therapist, as he was my only hope at not killing myself. When I told him that I could never trust him after seeing him laugh with my "psychiatrist," he was shocked and told me he didn't realize that would offend me. I should probably pray about that, I was told. He himself did not believe me that I actually was ill until he witnessed a flashback. When I came to, I told him I wanted to die. He suddenly realized I wasn't a "hysterical female" and demanded I be on medication and possibly permanently institutionalized if it got worse. From 0-100 in less than 60 seconds. Impressive. He hadn't ever seen anyone actually go through something like my episodes, and was completely at a loss as to what to do for me. He also was not aware that people could go through more than one trauma in their lifetime. Worst. My only experiences with mental health professionals before that was countless (at least 10) psychologists and therapists who were hired by my insurance company to get me to say that the physical illnesses I had were all psychosomatic (i.e. I was doing it to myself because I was an attention whore. One counselor's words, not mine) so they wouldn't have to pay for any of my medications or treatment. Spoilers: I have three debilitating chronic illnesses that are worse than they would be because I wasn't treated properly for 25 years. Here's hoping that this upcoming experience with mental health professionals is better.
I don't know how much longer I will have my mobility. My next doctor appointment, I'm going to be talking with a physician about getting a wheelchair. I haven't danced in months. I haven't been able to drive a car for any distance by myself for two years now. And yesterday, the pain was unlike any I have ever had (with the exception of the pain from surgeries, because holy shit that hurt). My body is telling me that I am doing too much. And I'm upset and terrified, because all I am doing is sitting on couches or sleeping on beds and yes, I'm cleaning and taking care of a small pup but my goodness, that's nothing compared to what some people do and here I am completely unable to even do the smallest of tasks? It's upsetting.
I get these urges to just do stupid things to my body because who the hell cares, right? What is it going to matter if I drink myself to death or smoke until I have cancer? Or eat until I throw up? Or go walking in a bad neighborhood by myself at 3 AM? Or smack my head into a wall until I see blood? The self-harming voices are getting loud. Thankfully, I haven't done anything yet. I have a service dog who recognizes the spiraling thoughts and comes to jar me out of them. And she's teaching little Jeph to do the same. Human hasn't spoken or moved in a bit? Time to lick her. She's already taught Jeph to climb on my lap and lick my tears while she licks my hand. And my husband refuses to let me get away with saying everything is "fine" when he knows damn well it isn't. If I didn't have them, I would have been dead by now.
So here I am, on a Sunday morning, having not showered in days. I'm completely exhausted mentally, physically, and emotionally. My service dog has "grounded" me at least six times while I was writing this. I know I might lose people. I know I might only have three views. But I have to be honest.
Stay safe until tomorrow, friends. And I will try to do the same.
Friday, January 27, 2017
Showing Love Through Dessert
I'm absolutely in love with baking. I like bringing joy to people through pastries. Is it your birthday? Have a cake. Did you have a big test? Have some cookies. Is it Tuesday? Have some scones. Fresh baked bread, anyone? What about extra frosting from scratch? Are you gluten-free? No problem. I got you. Lactose-free, nut-free, everything-free? No worries. I will show up at your door with food made just for you.
One time in college, I baked five cakes for my own birthday and went door to door giving cake away. Another time, I baked five batches of chocolate chip cookies for a group of exhausted students. And yet another time, I showed up at a friend's door with their favorite cookies because they texted me that everything sucked. I do things like that all the time.
There isn't a lot I can physically do. I can't always wake up at 4 AM to help a friend in need, as sometimes my medication makes me dead to the world in the night. I can't help anyone move as I can't physically lift anything heavy. I can't babysit a young mother's kids, as I never know when I will fall or get horribly ill out of nowhere. But I can make amazing desserts and I can show up at your kids' soccer game with snacks or feed you homemade fudge while you cry over a break-up or feed an army of movers with homemade pizza and brownies. I can't do much, but I can show love to my friends in the best way that I can.
Now if you'll excuse me, I've got to go frost the layer cake I have made for some new friends who are coming over tonight. And then maybe make some cookies. Or fudge. We will see. But it's definitely all going to get paired with ice cream sundaes.
One time in college, I baked five cakes for my own birthday and went door to door giving cake away. Another time, I baked five batches of chocolate chip cookies for a group of exhausted students. And yet another time, I showed up at a friend's door with their favorite cookies because they texted me that everything sucked. I do things like that all the time.
There isn't a lot I can physically do. I can't always wake up at 4 AM to help a friend in need, as sometimes my medication makes me dead to the world in the night. I can't help anyone move as I can't physically lift anything heavy. I can't babysit a young mother's kids, as I never know when I will fall or get horribly ill out of nowhere. But I can make amazing desserts and I can show up at your kids' soccer game with snacks or feed you homemade fudge while you cry over a break-up or feed an army of movers with homemade pizza and brownies. I can't do much, but I can show love to my friends in the best way that I can.
Now if you'll excuse me, I've got to go frost the layer cake I have made for some new friends who are coming over tonight. And then maybe make some cookies. Or fudge. We will see. But it's definitely all going to get paired with ice cream sundaes.
Thursday, January 26, 2017
Time Out
Today, I am exhausted. There is pee on every blanket we own except for two that are currently on the bed. These two are totally inadequate for sleeping under, but you do what you have to when you're hopelessly behind on laundry. Thank God for my husband who spent three hours cleaning our house with me tonight. All that is left to do is the mountain of laundry before we have friends over this weekend. Jeph had no accidents on the floor today. But the bed...oh, the poor bed. He had a shower today (he prefers them to baths) and was so upset by how cold the world outside the shower was that he just couldn't keep control of his bladder. So while I was getting a new towel for the shivering pup, he cried and walked slowly around the entire bed, peeing a trail of sadness. I of course did not blame him. Showering is a pretty big deal for the little guy. And he watched his poor sister get subjected to a bath before his shower. Tonight, he learned the command, "Quiet," with copious amounts of treats. After that, he was just so exhausted that as we were cuddling he looked at me with pure guilt and whimpered as drops of pee spurted onto the new bed covers. So now here we are. Late at night with all the blankets and sheets in the laundry with some form of dog pee on them.
Sometimes, Jeph or Riley will get too wild or too demanding or just plain too wolf-like and they get a brief time out. But they are not the only ones. I've noticed that when I take my own time outs, I can handle the stress of puppy parenting a lot better. My husband has been insisting that I take my baths that I am told by doctors are essential to my healing. So every day this week, he has taken Jeph to another room and I have sat in a muscle-relaxing, toxin-sucking bath. Riley is my service dog and she stays with me during baths in case I need her, but she is very quiet when she is working and it is easy to relax and to try to calm my nerves. I also have been relying on Riley's older sister skills. I have been letting Jeph and Riley outside and actually closing the door behind them and only glancing occasionally through the window to make sure they have not tunneled under the fence. Riley is taking pride in taking care of Jeph and teaching him how to play and investigate outside. She also has been using him as her own personal itch-reacher. When she cannot reach a spot, she indicates it and he bites into the spot until she licks his head. It's adorable and weird all at the same time. But I digress. Anyways, when she takes Jeph on an outdoor or indoor adventure, I get a few minutes to breathe and re-focus my mind. These "time out" moments are heavenly, and I hope to continue to find them.
Sometimes, Jeph or Riley will get too wild or too demanding or just plain too wolf-like and they get a brief time out. But they are not the only ones. I've noticed that when I take my own time outs, I can handle the stress of puppy parenting a lot better. My husband has been insisting that I take my baths that I am told by doctors are essential to my healing. So every day this week, he has taken Jeph to another room and I have sat in a muscle-relaxing, toxin-sucking bath. Riley is my service dog and she stays with me during baths in case I need her, but she is very quiet when she is working and it is easy to relax and to try to calm my nerves. I also have been relying on Riley's older sister skills. I have been letting Jeph and Riley outside and actually closing the door behind them and only glancing occasionally through the window to make sure they have not tunneled under the fence. Riley is taking pride in taking care of Jeph and teaching him how to play and investigate outside. She also has been using him as her own personal itch-reacher. When she cannot reach a spot, she indicates it and he bites into the spot until she licks his head. It's adorable and weird all at the same time. But I digress. Anyways, when she takes Jeph on an outdoor or indoor adventure, I get a few minutes to breathe and re-focus my mind. These "time out" moments are heavenly, and I hope to continue to find them.
Monday, January 23, 2017
Fibro-Friendly Clothes!
(The opinions expressed in this post are all my own. I am not being paid anything by anybody to express these opinions.)
You guys. You GUYS. I found the most amazing clothing store! It's called Lovesick and it's by the same company that runs Hot Topic and Torrid. But the clothing selection is so much better than Torrid's! And everything is so incredibly soft. I haven't worn jeans without severe nerve and stomach pain ever in my entire life. And now, thanks to Lovesick, I have six pairs of pants to partner with their incredibly soft tops. All their clothing can be mixed and matched. I regret zero of my purchases there. Everything seems to have a bit of spandex in it. I suffer from a lot of swelling issues, and I like clothes that aren't restrictive and don't cut into my skin during swelling episodes. Their smallest size is an 8 (000 in their sizing), so smaller Fibromyalgia friends won't be able to shop there. But fear not! H&M is also a great go-to. While their selection of soft, Fibro-friendly garments is smaller, it was my go-to before medications caused my weight to do some crazy things. You'll need to touch each garment individually at H&M and look at what fabrics are in the garments before trying them on. I can usually tell by touching the garment on the rack whether or not it will be itchy or painful on my body. Cotton/Polyester blends are hit and miss, but Cotton/Polyester/Spandex will usually be alright. Rayon is straight-up itchy unless it's a super-small ratio. Linen and Wool are also things to look out for, as they will seriously piss off angry nerve endings in the skin, particularly on the arms and back. Make sure you cut off the tags, or you'll be all scratched up by the day's end. Fibromyalgia is a symptom of Ehlers-Danlos, as is easily scratched, dented, and ripped skin. If I had a nickel for the number of times I have had garments cause me bleeding sores, I could buy even more soft, stretchy clothes. I'm sick of spending all my time in pajamas, and these two stores are absolutely making a real wardrobe possible.
I hope this is helpful to my fellow Chronic Illness warriors (AKA Spoonies).
Helpful links:
http://www.lovesick.com/
http://www.hm.com/us
You guys. You GUYS. I found the most amazing clothing store! It's called Lovesick and it's by the same company that runs Hot Topic and Torrid. But the clothing selection is so much better than Torrid's! And everything is so incredibly soft. I haven't worn jeans without severe nerve and stomach pain ever in my entire life. And now, thanks to Lovesick, I have six pairs of pants to partner with their incredibly soft tops. All their clothing can be mixed and matched. I regret zero of my purchases there. Everything seems to have a bit of spandex in it. I suffer from a lot of swelling issues, and I like clothes that aren't restrictive and don't cut into my skin during swelling episodes. Their smallest size is an 8 (000 in their sizing), so smaller Fibromyalgia friends won't be able to shop there. But fear not! H&M is also a great go-to. While their selection of soft, Fibro-friendly garments is smaller, it was my go-to before medications caused my weight to do some crazy things. You'll need to touch each garment individually at H&M and look at what fabrics are in the garments before trying them on. I can usually tell by touching the garment on the rack whether or not it will be itchy or painful on my body. Cotton/Polyester blends are hit and miss, but Cotton/Polyester/Spandex will usually be alright. Rayon is straight-up itchy unless it's a super-small ratio. Linen and Wool are also things to look out for, as they will seriously piss off angry nerve endings in the skin, particularly on the arms and back. Make sure you cut off the tags, or you'll be all scratched up by the day's end. Fibromyalgia is a symptom of Ehlers-Danlos, as is easily scratched, dented, and ripped skin. If I had a nickel for the number of times I have had garments cause me bleeding sores, I could buy even more soft, stretchy clothes. I'm sick of spending all my time in pajamas, and these two stores are absolutely making a real wardrobe possible.
I hope this is helpful to my fellow Chronic Illness warriors (AKA Spoonies).
Helpful links:
http://www.lovesick.com/
http://www.hm.com/us
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